John H
Forum Replies Created
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My freezing will occur during my off times. It is actually a trigger for me to know I am starting to run on empty. When freezing occurs I have to think about how I am going to start. left foot or right foot forward. I normally take my average step and try keeping the right pace so that I will not fall. Careful to not run. When freezing starts to occur. I take a break because it is downhill from there. Time to refuel. Take 12 carb/levo 25/100 a day
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John H
MemberAugust 3, 2021 at 3:19 pm in reply to: What would you like non-Parkinson’s patients to know?Everyday is a guessing game for me. I am never sure that what I want to do will be accomplished. You learn to live with what PD will offer you at a given time. Sometimes it just takes more time. Other times I have lost the skill to perform. Simple things like taking a walk, attaching a lure to my fishing pole. One day I will have no problem with these easy task. The next day, I will have a difficult time. Having PD, you live with unpredictability
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My mother had PD. My wife made the first diagnosis. I lost my smell 10-12 years before I was diagnose. My wife told me that I was scuffling my feet like my mother, my posture was not correct. My handwriting was starting to get bad. I follow up on her advice and visited a neurologist for the diagnoses.
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Yes my mother and her father had Parkinson’s. I share many of the same symptoms of my mother.
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Think BIG steps. I get into freezing when I start taking smaller steps with very little hand movement. I try to stop at that time and tell to myself I need to start taking bigger steps and move my arms bigger. There is a Parkinson exercise BIG program that I have taken and I perform the nine BIG exercise every morning for the past 2.5 yrs. I feel it helps me with thinking BIG all the time.
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I experience body jerking prior to being diagnose with PD. It would occur randomly and about three to four times a year. After five years of my PD diagnosis the frequency has changed to one-two twitches a month. They are not the same. Some are scary where my entire body shakes and other times it is just my leg will twitch. Everything just happens in a split second and I never know when it will happen. They have occur while sitting, laying in bed and when playing golf or working outside.
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John H
MemberMarch 2, 2021 at 2:18 pm in reply to: Do or did any of your family members have Parkinsons?My mother and her father had Parkinson’s. I have many of the same symptoms as of my mother.
No hand tremors, walking, gait , freezing, swallowing, hand writing, energy level and a
sharp mind.
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John H
MemberJanuary 12, 2021 at 5:50 pm in reply to: What do you do to prevent yourself from falling?I am 80 years old. Diagnose with PD at 75. Daily I follow the BIG program exercises. I have not yet fallen. When I start having a walking problems. I start walking with gorila steps. Wide and longer steps. I feel when taking shorter steps I get the feeling of falling.