Forum Replies Created

  • John H

    Member
    January 4, 2022 at 3:16 pm in reply to: Managing Freezing Episodes

    My freezing will occur during my off times. It is actually a trigger for me to know I am starting to run on empty. When freezing occurs I have to think about how I am going to start. left foot or right foot forward. I  normally take my average  step and try keeping the right pace so that I will  not fall. Careful to not run. When freezing starts to occur. I take a break because it is downhill from there. Time to refuel. Take 12 carb/levo 25/100 a day

  • John H

    Member
    November 26, 2021 at 7:49 am in reply to: Where do you live?

    Live in High Point  NC

  • John H

    Member
    August 3, 2021 at 3:19 pm in reply to: What would you like non-Parkinson’s patients to know?

    Everyday is a guessing game for me. I am never sure that what I want to do will be accomplished. You learn to live with what PD will offer you at a given time. Sometimes it just takes more time. Other times I have lost the skill to perform.  Simple things like taking a walk, attaching a lure to my fishing pole. One day I will have no problem with these easy task. The next day, I will have a difficult time. Having PD, you live with unpredictability

  • John H

    Member
    May 18, 2021 at 3:07 pm in reply to: How many doctors did you see to get a diagnosis?

    My mother had PD. My wife made the first diagnosis. I lost my smell 10-12 years before I was diagnose. My wife told me that I was scuffling my feet like my mother, my posture was not correct. My handwriting was starting to get bad. I follow up on her advice and visited a neurologist for the diagnoses.

  • John H

    Member
    May 13, 2021 at 5:40 pm in reply to: Does Parkinson’s run in your family?

    Yes my mother and her father had Parkinson’s. I share many of the same symptoms of my mother.

  • John H

    Member
    March 18, 2021 at 5:48 pm in reply to: Becoming Unfrozen

    Think BIG steps. I get into freezing when I start taking smaller steps with very little hand movement. I try to stop at that time and tell to myself I need to start taking bigger steps and move my arms bigger. There is a Parkinson exercise BIG program that I have taken and I perform the nine BIG exercise every morning for the past 2.5 yrs. I feel it helps me with thinking BIG all the time.

  • John H

    Member
    March 17, 2021 at 5:59 am in reply to: Dyskinesia, jerky movements in sleep

    I experience body jerking prior to being diagnose with PD. It would occur randomly and about three to four times a year. After five years of my PD diagnosis the frequency has changed to one-two twitches a month. They are not the same. Some are scary where my entire body shakes and other times it is just my leg will twitch. Everything just happens in a split second and I never know when it will happen. They have occur while sitting, laying in bed and when playing golf or working outside.

  • John H

    Member
    March 2, 2021 at 2:18 pm in reply to: Do or did any of your family members have Parkinsons?

    My mother and her father had Parkinson’s. I have many of the same symptoms as of my mother.

    No hand  tremors, walking, gait , freezing, swallowing, hand writing, energy level and a

    sharp mind.

  • John H

    Member
    January 12, 2021 at 5:50 pm in reply to: What do you do to prevent yourself from falling?

    I am 80 years old. Diagnose with PD at 75. Daily I follow the BIG program exercises. I have not yet fallen. When I start having a walking problems. I start walking with gorila steps. Wide and longer steps. I feel when taking shorter steps I get the feeling of falling.