Forum Replies Created

  • Gary

    Member
    February 19, 2023 at 7:53 am in reply to: Medications

    I finally was able to get my c/l in DHIVY form. This is still 25/100 but oblong and scored into 1/4’s. Using a stout, sharp blade DHIVY is far more exact if you are dividing your tabs for a more carefully moderated titration. Also, it is much faster as you are not having to carefully load a pill cutter. For me, it is slightly more expensive, but I feel justified since during the four years I’ve been diagnosed I’ve used fractions of a tab often. You can ask your neurologist for a sample.

  • Gary

    Member
    February 9, 2023 at 5:11 pm in reply to: Hair loss & peeling of the face

    I noticed about three months ago that I had peeling skin on my eyelids. Right now all I have to do is wipe it off with a washcloth and I don’t notice it the rest of the day. It seems to me that a basic job of shampoo is to eliminate flakes of dead skin. My cheeks haven’t looked this good for a long time. The shampoo is called Vanicream.

  • Gary

    Member
    January 3, 2023 at 3:23 pm in reply to: Do you have low back pain not responding to PD medications?

    Kim, I would say low back pain is my most consistent discomfort caused by PD. Besides my yoga and stretching which I do every morning, I get on the treadmill for a mile. I bought  a recliner that gets my feet up to chest level. I’ve read somewhere that your back should get lower than 45 degrees. I bought a memory foam mattress. Pricy  but I moved twice last Spring and Summer and had a lot pain. A sales person gave me a valuable tip. If you sleep on your back, use a firmer mattress, and right then and there I made the decision that I was going to try my best to stay on my back when I went to bed. This has been a major improvement in minimizing my back pain. My current meds dosage is eight tabs C/L and a 4 mg Neupro patch. diagnosed November 1, 2019.

  • Gary

    Member
    December 24, 2022 at 3:41 pm in reply to: Early signs and symptoms

    Ally, My exercise consists of treadmill for two half hour periods per day. I try to stretch my movement over all my waking hours. I don’t want to compact them. If my hunting or fishing is strenuous I’ll take those as a substitute. One of my earliest symptoms was a feeling of lactic acid in my muscles.  But in my mind it went against all the advice on the value of exercise when having PD. Found an exceptional physical therapist in La Crosse that has given me stretching to assist getting in and out of bed. I lift weights to help me carry a gun all day. I shoot archery to keep my right hand tremor in check but for various reasons had to get more consistent so went back to pushups. Time will tell. I like touch your toes; deep squats; an elastic band around my knees just to name a few that I can explain. Find a good physical therapist. Get to a health club or YMCA and explore. Working new muscle groups helps. There is something like half of a round 10 foot diameter cage that I have found to be very useful. It has a chart with pictures of how this apparatus can be used for stretching though it would seem to help with muscle tone also. It gives me new options and  keeps my efforts interesting.

  • Gary

    Member
    December 22, 2022 at 10:38 pm in reply to: Levodopa Reduction?

    DHVY is c/l in an oblong shape scored into quarters to facilitate more exact dosage. Drs. in the US are just now getting free samples.

  • Gary

    Member
    December 22, 2022 at 3:38 pm in reply to: Levodopa Reduction?

    Richard, if you don’t mind me asking, how are you measuring .75? Have you found a source for DHVY?

  • Gary

    Member
    December 22, 2022 at 5:11 am in reply to: Interesting Topics

    <p style=”text-align: center;”>A. Success at treating PD with High Intensity Ultra Sound.
    B. Phase 3 trials with success in meeting their goals.</p>
    C. Internet support groups.

  • Gary

    Member
    December 16, 2022 at 9:08 am in reply to: Go-To Gadgets for Life with Parkinson’s Disease

    The parallel bars that are “L” shaped. The long legs go between your mattresses and the short legs joined together are the handle that not only help a person get in, stay in, or get out of bed, I’ll lean against mine to add stability when dressing, and they can also prevent falls if you are near by when unsteadiness occurs. Happy Holidays!

  • Gary

    Member
    December 14, 2022 at 10:55 am in reply to: Early signs and symptoms

    Hello everyone, my first symptom was tremor in my right hand. It started at least 10 years before I was diagnosed and it would start for no reason. My first PD symptom was my right foot sticking to the floor. I suspected PD right away. This was November 1, 2019. Another symptom I look back and see, is my voice being hoarse for the first few days of school. I thought it might be sinus related but it could also have been PD. My voice is usually hoarse now. But if I use it, it clears up. So far exercise has reduced my tremor substantially. An interesting symptom I have at this time is that my skin is peeling on my eyelids.