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  • I read something almost every day. I’m 79. My Dad was Diagnosed at 50 in 1960 before LEva Dopa. He was actually one of the many test patients. My Mother found a Dr at St Barnabas hospital in the Bronx near the Zoo.Dr Joel Cooper. he di 2 surgeries on my Dad. he used liquid Nitrogen to freeze the affected parts blocking the Dopamine. First surgery for his left side worked with good results. stopped the tremor. stopped the freeze while walking. in a few months after the first surgery LDopa started testing. instead of waiting for Dopa the decision was made to operate again for his right side symptoms. that surgery ruined what ever good he had left in his life. could hardly talk. total depression. horrible involuntary movement. He then started the LevaDopa test. it helped some but the 2nd surgery ruined his life. I was diagnosed 2018. symptoms started 2015. My symptoms are liteheaded feeling and terrible fatigue. My wife and I being familiar with the disease and have some experience with doing recreational Drugs years ago we are staying a little bit ahead of the fatigue with Modofinilo and Vit B1 and of course LevaDopa. I consider myself a Very Lucky Person with PD and am grateful for all my days. Even the Off days where i sleep all day.

  • Bart Salop

    Member
    October 4, 2022 at 2:10 pm in reply to: Where do you live?

    Isla Mujeres Mx

  • Bart Salop

    Member
    October 9, 2022 at 12:44 am in reply to: Which symptom is most challenging to navigate?

    Fatigue. if i see a flat spot i want to lay down. i take modofinilo and caffeine. i sometimes sleep 2 days in a row with the medication.

  • Bart Salop

    Member
    October 4, 2022 at 2:58 pm in reply to: Non-Motor Symptoms in Parkinson’s Disease

    Depression i handle with small amounts of smoking Pot. Always improves my mood. Not much helps my runny nose. a nose drop for dry noses (believe it or not) is the closest to a little help. i too have a head that itches. i do have dandruff from it. Fatigue Fatigue Fatigue. My worst. I also have much apathy connected to my fatigue.I take Escotralapram. we are considering trying something else. i have to talk to my Neurologist.

  • Bart Salop

    Member
    October 4, 2022 at 2:58 pm in reply to: Non-Motor Symptoms in Parkinson’s Disease

    Depression i handle with small amounts of smoking Pot. Always improves my mood. Not much helps my runny nose. a nose drop for dry noses (believe it or not) is the closest to a little help. i too have a head that itches. i do have dandruff from it. Fatigue Fatigue Fatigue. My worst. I also have much apathy connected to my fatigue.I take Escotralapram. we are considering trying something else. i have to talk to my Neurologist.