Angela
Forum Replies Created
-
My husband used to watch TV as soon as he got home from work until bedtime and now it is on from 8am to 10 or 11 pm. He will take a break of an hour or so to do something. It is mind numbing and I wish the TV was off but I guess it gives him comfort.
-
My husbands body odor has become more pungent. He showers but even the towels retain the odor. He as well has foul smelling flatus constantly which is overwhelming. I think it has something to do with constipation or something else.
-
Hi,
I’m not too sure of the brand names but my husband who has Parkinson’s got a really Firm mattress because he was unable to move out of position on a pillow top or mid firm . It hurts my back because it is so hard ( I may sleep in another bed) but he loves it and can get out of bed earlier. We just use a bottom sheet and a duvet over, He sleeps naked so there is no PJ’s to get caught in anything -
Hi a once a month zoom meeting sounds reasonable . I am in the pacific zone ( Vancouver/ Seattle) and works days. What time were you thinking would work?
-
Hello,
My husband was told that he had 5 years before he would lose all function. He is just 60. I am trying to find ways to support him. I am seeing a lot of his ADL’s slipping. I am worried about him driving and handling power tools. He is quite depressed and I find him sobbing quite a bit. I am 65, working at a emotionally stressful job with the homeless, have grandchildren and my own mental health problems. I find I am doing more and more of the household chores and it’s draining. When he doesn’t understand things on the computer or something he has read he panics and I have to drop everything to solve his problem.
He refuses to use any mobility aids like a walker and I am afraid he will have a fall. He can’t handle anything that is not routine such as a birthday party or visiting his daughter who is in addiction. I think we could pool our resources via zoom. I am home by 630 pm usually BC time. Thanks -
You must be so overwhelmed. I am a nurse who is watching my husband decline and have 8 grandchildren. My husband has the rapid form of Parkinson’s. I feel so overworked trying to take care of him, the house and all the grandchildren.
I told him I feel like a single mom and he said well just pretend you are. I said this is a marriage. I don’t want to be the sole supporter of everyone.
I keep going . That’s all I can do. I am 65 and feel like I will have to work for many more years to support my husband. I do get frustrated, cry and am depressed. I as well have my own health issues.
I still try to carve out a little time for myself and just don’t come home right away after work.
God is my help right now and I am praying he gives me the strength to carry on.
Who knows maybe science will find a way to cure this terrible disease. -
Can you please send me the zoom link.