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    • #16626
      Ally
      Keymaster

      We acquire new information about ourselves and the world around us every day, including Parkinson’s. What is something you learned about the disease very recently? How did you learn it? Has that learning change your life or outlook in any way?

    • #16629
      Dan
      Participant

      Today, my Dr. told me about a potential under the tongue preparation that may soon be available? There is a lot of activity in the PD meds arena….

    • #16639
      Jean Mellano
      Participant

      dan, from your lips to God’s ears…

    • #16685
      Dan Freedman
      Participant

      I learned that tears contain biomarkers that can detect PD. I’m hopeful that this means PD can be detected years before symptoms emerge, which may help people protect their own neurons via exercise, etc., and lengthen the time between this kind of diagnosis and the emergence of symptoms.

    • #16709
      Jean Mellano
      Participant

      dan, i believe forewarned is fore armed… it seems like so much  money is spent on  research for a cure or halting progression and no progress seems to be made.  we hear about advances like you mentioned and nothing seems to come of it.

    • #16717
      Carol Rothfeld
      Participant

      I learned through a study with 23andme that I have the gene mutations for LRRK2 and GBA. My daughter who doesn’t have PD was tested and has the mutated genes also.

    • #16731
      Jean Mellano
      Participant

      carol, i am sorry to hear your daughter has the mutated genes. it must be tough to handle…. i dont know if  it is better that ignorance is bliss, or being forewarned and fore armed

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