Charles H Levin

I began Sinemet about two years ago, 25/100, one pill, three times daily … In March, I discussed dosage change with my doc … I was starting to have a mild off episode after about 4.5 hours … so he left the decision of adjusting the dosage to me … I eventually settled on 1.5 pills, three times a day. Working fine. I have never had any side…[Read more]

We just finished watching the first season of Shrinking on Apple TV+, starting Jason Segel and Harrison Ford on Hulu … Hysterical … and Ford plays a character with Parkinson’s … the depiction is fairly respectful and realistic ….

I play Wordle every day (occasionally Spelling Bee), read a lot (newspapers, books, magazines) and am a passionate amateur fine art photographer. The latter involves several software applications (Photoshop, Lightroom and others) that are challenging to learn and apply to images.

Besides that, I’ve always been an exercise person and more so now:…[Read more]

Hector … Where are you buying THC syrup? I’ve been trying CBD gummies (300 mg) to help me sleep a full night, but it doesn’t appear to help …

Thanks, Krukar …

As you can see from the first post, the Today Show (NBC) has picked up the story. Beyond that no other major outlets like NPR, PBS, NY Times, WaPo, WSJ have yet to follow. Yes, this does look incredibly promising.

Krukar … Do you have a link for the trial? And must you live in the Bay Area to participate? Lastly, what level of symptoms are they…[Read more]

This may be worth investigating more. But this study was published in 2008. Why have we not heard more about it since then? That raises some serious red flags for me.

Interesting … I’m not having that issue … I do about 35-40 mins on my elliptical, 30 of those minutes at 80-85 percent of my max heart rate … I monitor with an Apple Watch …

What I have noticed after my workout is that my tremor is more pronounced and I can barely type for about 30 minutes… which is frustrating …

I get fatigued on…[Read more]

I meditate nearly every day. I’ve been doing it for 11 years, which is eight years before my official diagnosis (docs have credibly shown that my PD symptoms started in 2007 or earlier; it’s complicated) ….

As for PD, I suspect that meditation helps to lower stress. Meditation is widely recognized in the healthcare community as beneficial. All…[Read more]

I agree with most of these posts …

Cardio … 4x a week … I use an elliptical and go 30 continuous minutes at 80-85 percent of my max heart rate … I monitor it with an Apple Watch … my doc (head of dept. at Cedars in LA) stressed this and hitting those numbers …

Strength … 3x a week about 30 minutes … combination of TRX and…[Read more]

Don,

I notice an increase in my tremor for a bit right after vigorous exercise (which I do religiously four days a week). But in the bigger picture, I would say that my tremor is barely noticeable most of the day … and I suspect the exercise (and meds) are the reason.

cl

I believe the answer is yes … This article mentions the study that my doctor has stressed to me … 30 continuous minutes at 80-85 percent of your max heart rate … I do this on an elliptical … it takes me about eight minutes to get into that zone … then I turn on my Apple Watch to make sure I stay there…[Read more]

Don,

I use an Apple Watch to monitor my heart rate on the elliptical … but the answer to the forum question is “Yes.”

Can exercise help patients gain ground on Parkinson’s disease?   

I read the website and the research appears to be informed from documented studies. It appears that the most salient results are observed at about three months.

My only skepticism is the question of the placebo effect, which basically causes your brain to produce dopamine. So I think it’s hard to know if it’s really working …

That said, I’m,…[Read more]

All …

Here’s an interesting update on Mannitol and PD … As posted here, I, too, started using it in June and noticed (after about three or so weeks) a recognizable improvement … particularly in the slowness of muscle movement.

I asked my neurologist about it a year ago and he dismissed it without offering an explanation. I just had my…[Read more]

There are now numerous lawsuits wending their way through the courts, seeking to sue the manufacturers of paraquat. It is illegal in more than 50 countries but not the US. Two state lawmakers in California are introducing a bill to ban it. Senator Cory Booker and someone from the House are also sponsoring legislation to do the same.

I started taking it in June and it seems like I’m having some positive results. Mostly I notice less problems with “slowness of muscle movement” … Everything from walking up a flight of steps to typing … Possibly less brain fog, too …

My tremor, still mild, in my left hand remains unchanged … and it’s starting to appear every so slightly…[Read more]

I’m so glad someone raised this question. When I was diagnosed in June 2019, my doctor at that time did not recommend much of anything. My symptoms were remarkably mild (long story behind this), and it would be another year before I started taking meds. However, over the course of several followups, I got the impression the doctor was trying to…[Read more]

Greetings …

Thanks for posting this study … I will try Solace … the data seems compelling …

Re: Mannitol … After reading a spirited chat forum about it a few months ago (and following it for longer), I started using it … I began with a 1/4 teaspoon and worked my way up to 2 1/2 teaspoons in about three weeks … I based that dose on…[Read more]

For now, I’m taking both meds and Mannitol about 1-2 hours before breakfast … partially because you need to keep food away from Levadopa for at leat 30 minutes and also because my breakfast is a smoothie and I can’t operate the blender until my girlfriend is awake … lol …

How long ago were you diagnosed? And how long after that did you…[Read more]