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Is your PD progressing quickly or slowly?
Everyone one with PD progresses at different rates. Do you think your PD is moving quickly or slowly? If quickly, are you noticing new symptoms or are existing symptoms getting worse?
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6 Replies
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Hi. How to know and measure progressive of Parkinson. Slow or fast are means different things to different patients
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Thamer, for myself, I have noticed I am clumsier, my fine motor skills such as typing are getting worse. I was diagnosed in 2015, so I am guessing my PD is progressing slowly. I constantly analyze my body and how it is performing, a habit left over from my athletic days. It is difficult to determine since it is subjective.
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Very slowly, maybe because I’m taking:
Vitamins C, D and a B complex, CoQ-10, Citicollina, Omega-3 and lots of cardamom. This apart from the Azilecte, Sinemet and Mirapexin. I’m a pescatarian and avoid refined sugar. There’s no way of knowing how I’d be if I weren’t doing all this, but I thought I’d mention it.
There’s a nifty tool on GooglePlay called the Vibration Meter, which measures the amount of tremor you have just holding your cell phone. First of all, I have found that this tremor can vary a lot during the day, which calls into question tests that check progress quantitively measuring tremor. My tremor has increased from being in the 20-30’s in 2015 to the 30-40’s now.-
Thank you Lou for sharing your regimen. I agree, there are so many things we may try in addition to meds, it is hard to say what is working and what is not. I am hesitant to stop taking any of my supplements in fear that I might get worse. I too try to watch my sugar intake,although I am addicted and take a multitude of supplements. That vibration meter you mentioned sounds interesting.
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May be I’m wrong, but I think it’s not so difficult to assess the progression of Parkinson. If you really want to know it, there is the UPDRS scale (Unified Parkinson Disease Rating Scale), that you can do at intervals of time and you can almost complete on your own. Apart from that, you can invent some “proxies” to have some answers . I (diagnosed in 2015), a few months later, handwrote 20 lines and kept them. From then, every year I repeat this silly exercise (obviously you can get worse in other symptoms and not in handwriting, or the opposite!) and compare my writings. Almost every day I make balance exercise, standing on one leg, may be just to wear trousers… So far is fine… so far… but I think will come one day that I won’t be able to do that! Anyway the best meter I think is the UPDRS questionnaire.
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Claudio, you have some excellent suggestions and I love the handwriting idea!
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