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  • Is anyone noticing hair loss?

    Posted by Deleted User on October 13, 2018 at 10:37 am

    It seems as though I am losing my hair. Not sure if it is a symptom of PD, side effect of meds, or just age.  Is anyone else experiencing hair loss?  If so, do you think it is related to PD or PD meds?

    Deleted User replied 5 years, 5 months ago 5 Members · 8 Replies
  • 8 Replies
  • Toni Shapiro

    Member
    November 28, 2019 at 11:13 am

    Hi Jean,  I have been losing my hair for a number of years now. My hair was shedding everywhere. I suspect it started about the time I first had PD symptoms but didn’t know it.  I have been using Rogaine since that time and funny that I was just thinking maybe the Rogaine is the cause of my PD.  I have a good head of hair though!

  • Deleted User

    Deleted User
    November 28, 2019 at 11:19 am

    hi toni, i shed more than my rabbit now… it is a good thing i had a good head of hair to start with.

  • M

    Member
    November 29, 2019 at 7:17 am

    Hi – Jean – I feel that my hair loss is in the normal range (i.e.what I notice when I brush or wash my hair), but what I do notice is that my hair does not grow back as thick or as fast as it used to, so my hair is thinner.  I have not been sure if that is my Sinemet or if it is in part because I am 67 and most of my friends around my age without PD complain of thinning hair as well.  (My two rabbits do shed more that I do.)

  • Deleted User

    Deleted User
    November 29, 2019 at 7:20 am

    hi M, I am becoming resigned to the fact i cant blame my hair loss on pd…darn, PD is usually such a good scapegoat!

     

    Are your bunnies rescue animals?  They are such sweet creatures 🙂

  • Ruth MacKenzie

    Member
    November 30, 2019 at 12:16 pm

    Hi Jean,

    i have been noticing hair loss, and unfortunately had  straight, fine hair to start with. Since my scalp is now visible on most of my head, I’ve started wearing wigs when I go out if I can’t back comb and spray my own hair into submission.  I definitely think my hair loss is a PD symptom

     

  • Deleted User

    Deleted User
    November 30, 2019 at 1:43 pm

    ruth, nothing surprises me about this disease any more.  thank u for sharing..

  • maureen

    Member
    November 30, 2019 at 4:03 pm

    I am my husband, of 50 plus years, caretaker. I noticed his thick hair started thinning when he was about 60.He is now 74. He also lost much muscle mass and grew a round belly. Up to that time he was a well muscled, incredibly able and coordinated tradesman. He also started losing his vigor around the same time and began falling. All of which was misdiagnosed as old age by his primary. Only after asserting myself very strongly did I get a MRI done that showed moderate atrophy. I also showed her video of him seizing up. So, now we are on our newest journey together. Regarding his hair loss, his scalp also got very crusty and he got rashes on his body that itch. He now used a dandriff shampoo, whcih helps and it seems some of his hair has come back and at least he is not losing it at the same rate.
    Interestingly, my husband, Bruce, is in a much beter mood now that he understands why he has been feeling so poorly for so long and his workouts had not been helping his “old age” condition. Especially, since I had no such old age symptoms and we are the same age. Up until his early 60’s we hiked, biked and canoed regularly and he was a builder and a projects guy. His lack of interest and motivation became evident, but it appeared he was simply becoming lazy, which didn’t seem to fit his MO. Finally,I became convinced it was neurological…I just had to convince his doctor to do some research. We now have a new diagnosis and a new path to walk together.

  • Deleted User

    Deleted User
    November 30, 2019 at 5:01 pm

    maureen, your husband is lucky to have you by his side advocating for him.   pd definitely ages us before our times. i hope he can resume exercising. i know my fatigue and lack of motivation gets in the way sometimes.

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