Ruth MacKenzie

Hi Robert, thank you for the wonderfully descriptive words to describe the ‘progression’ of this most un-progressive disease! I imagine your sense of humour helps you cope.

I coped with the changes my body threw at me for the first few years with ‘deParkinial’, it didn’t make the symptoms disappear , but I told myself the symptoms  were fig…[Read more]

Hi, I’m from British Columbia where I have been able to obtain whatever cannabis I wanted for about five years. The only thing I have found useful is either CBD oil or CBD edibles with a 10% THC component. These are very effective for helping me get to sleep and staying asleep for more than three hours at a time, and I don’t get the horrible nex…[Read more]

Hi,
My GP suggested I research the 40HZ sound waves because of the apparent affect in our brains, causing more activity. She wondered if the sound waves could be directed to the cells (neurotransmitters) affected by the unresponsive dopamine producers/transferrers, and assist them to return them to their original, working state.
Unfortunately, I…[Read more]

Hi Ally,  I live in (beautiful) Victoria, BC, so I’m relatively close to Toni. I moved here from Alberta in 1999 and was diagnosed  in 2007

Luckily I don’t feel I have a problem with apathy. That said, I have been taking venlafaxine every day since I had to stop working. I don’t know if that is what has helped me with apathy, but it has definitely helped with depression. I also meditate every day, and although some days it is very hard to make myself do my exercises and yoga, but I r…[Read more]

Hi Jean,

i have been noticing hair loss, and unfortunately had  straight, fine hair to start with. Since my scalp is now visible on most of my head, I’ve started wearing wigs when I go out if I can’t back comb and spray my own hair into submission.  I definitely think my hair loss is a PD symptom