Parkinson’s News Forums Forums Living ​With​ ​Parkinson’s How do you stay connected to loved ones?

  • Alan M

    Member
    May 15, 2025 at 8:47 pm

    Staying connected to my family and especially my spouse remains most difficult. I have one friend that I send emails and text messages to, but often don’t hear back from him as often.

    Ever since I was diagnosed with PD, my wife and I stopped being intimate. Chronic illness like PD tends to compromise sexual functioning — especially causing ED (erectile dysfunction). This particular situation has lead to us sleeping in separate beds, and has resulted in emotional and poor practical issues.

    I really miss having intimate sex. I find myself becoming very frustrated and angry at myself, too. I often feel distant from my spouse even though we hug one another occasionally. She seems to have specific issues and refuses to get too close physically.

    I sincerely wish we could agree upon general strategies for optimizing sexual functioning including adopting varied sexual positions, timing sexual activity, timing medication administration, and reducing or eliminating the use of offending agents like specific anti-dopaminergic medications.

    I need to see specific medicos to help us with these negative struggles. Who, how much and where are the biggest problems.

Log in to reply.