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    • #15025
      Jean Mellano
      Keymaster

      The weather has been very hot and humid where I live and I thought my fatigue was bad before, now it is really bad and I wonder if it is the temperature extremes.  Does the hot weather affect you?  If so, how?

    • #15115
      Lou Hevly
      Participant

      In Manresa (50km NW of Barcelona) it stays in the 90s through most of July and August (the price we pay for lovely sunny winters), but it doesn’t have any affect on my main symptom, RLS.

    • #15124
      Jean Mellano
      Keymaster

      lou, i bet you look forward to the winters 🙂

    • #15179
      Tracy
      Participant

      Thank you for this post. I’m glad to know I’m not alone. Fatigue is my worst symptom and YES, the heat is a challenge. If I’m in temperatures between 65-75 it’s like a kettle on the stove turned on low. The heat will wear me down and drain me if my energy at a slower pace. 75-90 and the heats turned up to medium. Anything above 90 and I feel like a sink full of water that someone’s pulled the plug and I’m on fast drain. I can literally feel the energy being sucked from my body in a matter of minutes. Here’s an example of medium heat. The temperature cooled down to mid-seventies and I ate dinner on back patio then played cards. I was outside about 20-30 minutes when I realized I couldn’t count or add 2+2 while trying to keep score. My mind was blank. When it’s high 80’s or hotter, my boss let’s me work from home. I’m in the basement where it’s 65. I love being outside and have always loved the heat. This is my first summer having to deal with these challenges. It’s killing me to not get outside. But on the flip side, I love to downhill ski in the winter. We went several times last winter and I did just fine.

    • #15181
      Jean Mellano
      Keymaster

      Hi Tracy. I was thinking my pd was progressing but perhaps it is the temp. Extremes.   You describe it very well.  Here in NY, it has been the hottest July in years with many days over 90 plus high humidity.  I look forward to crisp fall days in the 60s.  Heck, I will take 70s 😀

    • #15433
      Bob Hodgson
      Participant

      Perhaps someone can verify this but I was told that the extreme heat impacts the effectiveness of the carbidopa-levodopa. I notice that in high heat that I seem to need more medication. So from that perspective my symptoms are worse in higher heat levels.

      • #15435
        Jean Mellano
        Keymaster

        interesting.  i did notice on the high heat/humidity days, my fellow boxers in Rock Steady Boxing were all suffering as well.

    • #15427
      Mike P
      Participant

      I’m the opposite. I can go for a run when it’s 90°F with 85% humidity. I can’t tolerate the cold. If I start to get cold with combined stress I get the shivers easily. It’s hard to not appear to be a human sewing machine when attending my kids’ soccer and baseball games late fall or early spring in New England. Multiple base layers of merino wool help.

      • #15432
        Jean Mellano
        Keymaster

        mike

        thanks for sharing.  the extreme cold hits me hard too, although i think for me, extreme heat/humidity is worse

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