Clinical Trials

[gyuri]

75 clinical trials are an awful big number. If I may ask, how many were successful, i.e. if the drug or appliance or process went on to Phase 3 and eventually received FDA approval.

[neurodoc]

Ι totally agree with u.75?Even if they are legit,where did the pt have the courage to go through all of them?

[Don]

I have participated in 5 or 6 clinical trails including levedopa effects on cognition, MRI scans and most significantly photobiomodulation.

The light therapy using a Symbyx helmet and hand held laser seems to have made a marked difference with my neurologist commenting on my improvement, so much so that a tremor is about the only apparent symptom. This trial is still ongoing although I have finished participating

[frankenstein]

As a researcher, I would recommend caution. 1) What is the quality of the study? is it worth your valuable time and will the study have impact. 2) people have died in clinical trials.

[amy]

How do you qualify for all of them?

I find so many won’t take me because of my stage (was diagnosed too long ago/not severe enough/taking this medication/not taking that medication…etc)

Also, don’t they all have wait times from your last trial? Once you’ve tried something experimental (Say, in my case, a drug trial that lasted three years) you can’t participate in anything else for 6 weeks/6 months/whatever.

So, depending on how many years you’ve had PD, you can only fit so many in!