amy

I still ski–both Nordic and downhill! I’m just very cautious–stick to green and easy blue for downhill, and open pretty flat trails for Nordic. But to tell the truth, I was ALWAYS cautious. Now I just have an excuse!

– Amy…also 5 years in :o)

PS. Disclaimer: I didn’t ski last winter–Covid kept us from traveling. I really hope to ski this year.

Hands down, imho, is the website The Science of Parkinson’s. I don’t think you can find better, clearer information ANYWHERE. Check it out: https://scienceofparkinsons.com/

Ha! I hum whatever I heard last–the phone ringtone, a stupid song from a stupid ad on TV, or the little tune the washing machine plays to let me know the clothes are ready. Whatever song floats into my head, I guess.

I tend to do it when I am happy/busy… bustling around the kitchen cooking dinner for example.

Yes. I do not believe PD has affected my voice at all–in fact, I get told to pipe down all the time.

On the other hand, my PD seems to be progressing slowly in general. Five years in, still mild and one-sided, no dopamine replacement (yet). So I can’t say it’s the humming…unless we think humming is neuroprotective? THAT would be a kick!

Oh, the minute someone points it out I realize I’m doing it. It’s always a song, but sometimes it’s as dumb as the ring tone on my phone.

I hum constantly! It drives my DH nuts. I thought it was unrelated to PD, but if someone knows that it is I’d be fascinated..

Ditto exactly and everything you said.

Except as it has gotten into the high 90’s here in FL, I’ve turned to paper. I re-use them several times, but my (cute!) (homemade!) cloth ones are just too hot right now.

Hi Michel,

Re Azilect: I wish I could answer that! I don’t THINK it does anything for my symptoms, at least not much, but I can’t be certain because my symptoms are very mild…and as I said I take supplements and eat a crazy diet. Who knows what does what?

The one thing I can say is as far as I am concerned it has zero side effects. And…[Read more]

Forgot to add one supplement, which is magnesium. I think it helps with cramps, and possibly restless leg type stuff.

But here is something else: I actually think it would hard to imagine avoiding dopamine replacement forever, for you or me or anyone…and I don’t care how well we take care of ourselves. Plenty of folks avoid gluten, or don’t…[Read more]

Hi Michel,

I’ve had PD for five years now and still don’t need dopamine. My symptoms remain mild and one-sided. I DO take Azilect, 1mg/day, on the theory that it might be a little neuroprotective. I also take pterostilbene, reishi mushroom, baicalin, and omega 3’s.

I exercise, pretty faithfully (although covid has impacted that a LOT by closing…[Read more]

I’m curious that so few people are willing to even try keto, given all the (research showing its neuroprotective promise (not just for PD, but for epilepsy, traumatic brain injury, MS, stroke, etc…)

Anyway, I am on a strict keto diet and I intermittent fast as well. (In the end it is all about controlling insulin, encouraging autophagy, and…[Read more]