• This topic has 0 replies, 1 voice, and was last updated 3 years ago by Ally.
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    • #14484

      When a person is diagnosed with a rare or chronic illness, their whole life changes. Suddenly there are new parameters to follow – appointments to attend, medicines to take, and maybe even a new physical therapy or exercise routine to follow. Often a chronic illness limits a person’s ability to spend time in public or access certain spaces due to disability.

      The other thing that can happen is patients are thrust into the role of being an educator and advocate for their disease and its community. Sometimes this is a role welcomed by the patient, but it can be tiring and overwhelming too.

      Is this true for you? Do you consider yourself an advocate for Parkinson’s? Why or why not? If you are an advocate, is this a role you enjoy, or do you do it reluctantly? I’d love to hear your thoughts on this. 🙂


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