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  • Living with Parkinson’s

    Posted by Deleted User on January 29, 2024 at 5:45 am

    Even though having Parkinson’s disease (PD) might be difficult, there are many of things you can do to maintain or enhance your quality of life.

    It’s not easy to have a progressive, long-term illness like Parkinson’s disease. You are unique in the way you see and respond to life with Parkinson’s disease. Strive to have an adaptable attitude. There are several ways to adapt. You don’t have to give up significant hobbies or elements of your lifestyle if you make a few modifications and collaborate with your care team. Solution Available at Cheaptrustedpharmacy.com.

    Sussan Thomas replied 2 months, 1 week ago 8 Members · 7 Replies
  • 7 Replies
  • lovebearbear

    Member
    June 16, 2024 at 9:41 am

    AGood morning. My name is violet. I wad, diagnosed with Parkinson disease a few months ago. It changed my life not for the best, but, the worst! Unfortunately for me, my family, doesn’t really understand what’s happening to me. My mother told me to stop being a sissy! My oldest sister, tells me, other people are, worse off than me! My youngest sister is the only one who has been there and, has offered me any help or comfort. I really feel, alone right now. My friend that I’ve known for, 19 years, won’t even come to visit me anymore! It really hurts me more than words can say that, the people, I really need in my life right now, don’t really, give a dam! Have a blessed day!

    • Gerardo Olivares

      Member
      August 14, 2024 at 12:44 am

      Hi

      I know that is hard to accept the diagnosis cause I had depression for 2 years until found out that the life has to continue trying to be normal. Doing exercises and living one day at the time my life has changed drastically since I was diagnosed 14 years ago my Parkinson’s is been changed Last 3 months and I don’t know what I did wrong until the grade that my meds not working like usually do. You not alone somewhere is a person suffering worse than us .l don’t know if this makes sense to you and I am sorry for not write a good essay but I didn’t pass writing in the school.

      Let me tell you something about what helped me to get out of the depression was that i went to a. Convention of Parkinson’s from Michael j. Fox and I Learned that we not alone

      Find the next event if you can attend it this is going to help you a lot

  • Annamaria B

    Member
    August 16, 2024 at 2:40 am

    Hi I am 65 years old and was diagnosed 7 years ago with tremors of the left hand being the main symptom. I remember the neurologist telling me that my Parkinson was mild and recommend me not to browse too much in the internet for Parkinson. Maybe she was right, I would have been scared if I did so. Since I had not taken any medication yet, one year later I was lucky enought to enroll in the Biogen international clinical triaĺ, phase II, that was supposed to be a cure and at least for the first year I felt better as I was really convinced that it would work out. The second year was tougher as I had to travel back and forth in Rome from Sweden when covid had just started. Moreover it was evident that the clinical trial was not giving the hoped results. It is unfortunate that neurologists in general don’t stress enough how much important is a moderate to intensive regular exercise. Whenever I do it my motor symptoms are less evident with still s minimum smount of levodopa 3-4 times a day. I do not need nor have any caregivers. In fact, I take care of my 94 and 92 parents who are still independent and living by themselves and I do all the housecleaning and maintance ( including going up and down a ladder whenever needed) for myself and my husband plus my daily routine exercise: 1 hour walking, pilates, Harvard health exercises ( they are not specific to the condition) , elliptical, runner , bycicle at home. i have a few but very close friends.This year we went as usual in vacation in the Alps . I can still climb up steep paths up to 900 meters and about 10 miles far. What I have learned so far is to avoid unnecessary stress as much as possible and concentrate on the present, just stay positive!

    • Mary Beth Skylis

      Moderator
      August 19, 2024 at 10:39 am

      I have a tendency to browse too much on the internet when I get anxious, too. But there have been times when it’s been helpful!

    • cary corso

      Member
      August 27, 2024 at 1:04 pm

      I really admire your positive attitude and proactive approach to handling your Parkinson’s. It’s incredible how you remain so active and self-reliant, while also looking after your parents and making time for vacations in the Alps. You’re absolutely right about the importance of exercise, and it’s fantastic that you’ve established a routine that suits you so well.

  • olu

    Member
    August 30, 2024 at 3:55 pm

    Exercise, EXERCISE,exercise.

    read PNT. research for yourself.

    surround yourself with positive,supportive people.

    Love and honor GOD !

  • Sussan Thomas

    Member
    September 15, 2024 at 5:00 pm

    I mostly thank my friends for helping me have a fun time even in this condition. They assist me with most of the basic things. I guess in return, I give them some nice jokes (I’m good at making fun of myself), though that doesn’t happen often. I could say that my humor has saved me in a way, at least for now. We’ll see how things get worse, though. But for now, it’s going well

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