

Tahmy Moore
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Tahmy Moore
MemberMarch 19, 2020 at 4:24 pm in reply to: Would you like to be featured for Parkinson’s Awareness Month?I would love to share my story. Â The short version is as follows; I am a 50 year-old mother of 3 girls (22 yrs, 21 yrs and 18 yrs). Â I was diagnosed in 2011 when I was 42 years-old, but had been seeking a diagnosis since fall 2009. Â It took almost 2 years of nerve testing, physical therapy and guessing before a doc gave me carbidopa levodopa. Â My symptoms improved within the first day. Â I then went in for a DAT Scan which confirmed the loss of dopamine in my brain. Â Medication dosage has been my biggest battle. Â My “On-Time” and “Off-Time” have seesawed throughout the past 9 years. Â Physical exercise remains my best medication. Â Working out with a trainer for the past 18 months has been in great shape and able to minimize the effects of my Parkinson’s symptoms.
Tahmy
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Not to be so critical, but when I’m asked that question I always think. . . “Do you really want to know?” Â I think most people ask that question because they don’t know what else to ask, but they really don’t want to know the answer. Â So, it’s just easier to say, “Oh I’m doing great.”
The one I get asked the most is, “Are you limping?  Did you hurt your leg?”  I know I shouldn’t, but I enjoy saying, “Oh, no.  I have Young Onset Parkinson’s disease.”  Nine times out of ten the person is at a loss of words and I just smile.  Then they usually say, “I’m sorry.” And I always say, “Don’t be sorry.  I’m not.  I’m actually lucky.  Do you realize the percentages are so low for women my age to develop YOPD?  I feel lucky that I’m one of those few women in the world.  God must have something really special planned for me.”  🙂
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Tahmy Moore
MemberNovember 8, 2019 at 6:47 am in reply to: Do you feel like your day is not your own?I find myself worrying about the end of my day (late dinner with husband’s business associates) at the beginning of my day. Â All that worry creates anxiety that doesn’t help my symptoms and sometimes causes additional problematic situations in the beginning of my day. Â Sometimes I feel like yelling, “I WANT OFF OF THIS MARY-GO-ROUND!”