Forum Replies Created

  • Ted Wilton

    Member
    March 14, 2024 at 2:34 pm in reply to: What do you think of the term ‘Parkie’?

    I do not like the term “Parkie”. It seems to convey a light-hearted reflection on Parkinson’s Disease, and from my experiences, Parkinson’s is not a lot of fun.

    Ted Wilton

  • Ted Wilton

    Member
    July 28, 2023 at 12:12 pm in reply to: Which Parkinson’s symptom bothers you the most?

    Dizzy spells [perhaps caused by low blood pressure] and the so-called “goofy head” are most annoying to me, as both have hindered my mobility on uneven surfaces [I am a geologist, and this has essentially eliminated all of my field work now. As time advances these two symptoms seem to be getting routine, especially for the first few hours after I get up in the morning.

     

  • Ted Wilton

    Member
    April 13, 2023 at 2:35 pm in reply to: How do you deal with constipation?

    After I take my Sinemet along with a single Colace tablet in the morning, I take a single cap full of MiraLAX (actually the Costco version, which is less expensive than the MiraLAX brand) in a large cup of coffee. This seems to work almost all of the time and is generally effective in keeping me regular. I used to travel extensively with my job, and that always upset my system, even when I was able to use my regular routine, and it took a few days to get “back on schedule” once I returned home.

    Constipation showed up several years before I was diagnosed with PD, and the routine of daily MiraLAX was endorsed by a doctor when I had my most recent colonoscopy (about two years prior to the PD diagnosis). My neurologist has supported my use of MiraLAX, and suggested taking a double dose if problems become more frequent, but I have not had to resort to this increase.

    TED

  • Ted Wilton

    Member
    September 15, 2022 at 2:34 pm in reply to: What are your thoughts about Deep Brain Stimulation?

    Our youngest daughter, who is 37, had the surgery earlier this year, and it turned her life around, essentially it has been a miracle for her. So many of her symptoms are no longer active, and the reduction in her medications has been significant.

    I had been skeptical of its benefits, but in her case I was wrong. My PD is less pronounced than hers was, but if I ever get to that point, I will reconsider my earlier objections to it.