Sveinn Áki Sverrisson
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DBS changed everything for me. Before surgery, I was off for a long time every day, and strangely especially on weekends. I now take 50% less levadopa.
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I received DBS in December 2018 at Karolinska Hospital in Stockholm in Sweden. I am from Iceland. I was asleep all the time but before that people were awake to instruct the doctors if the electrical signals were located correctly. Power was started 30 days later. I did not take any medication for the first few days as DBS gave me energy without being connected. A current was applied to me when a month had passed. It took quite a long time (1 year + COIVID 19) to adjust. I take half less levodopa (madopar) after connecting to DBS. DBS has changed everything for me today.
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It is very good to read and participate in this discussion and be a member of this network. I am from Iceland and we don’t have any network the same as you have. I am not good at writing English so I hope you will forgive my Google Translate English.
I have my driver’s license but stopped driving 6 months ago and sold my car. I thought it was best for me to stop driving a car before putting someone in that situation to point out I could not be trusted to drive my grandchildren. We, men, think sometimes we know what is best for us and nobody can tell us how to live our lives, but when I was diagnosed with Parkins’s I stopped thinking that way.
Here in my hometown Hafnarfjördur we have a minibus service for disabled people to drive me where ever I will and need to go. I started using it in the same week I stopped driving and it felt relaxing.
I live alone but have had a female friend for 20 years with who I can shear my thoughts and feelings. We are in a “distance relationship” meeting at weekends and sometimes in the middle of the week. She is still working but I retired 2 years ago so it is good for me to be not so dependent on her asking her to drive me during working hours.
It takes the minibus half an hour to drive to Reykjavík where the doctors are and the hospital so all driving distances are not time-consuming.
It wasn’t very hard for me to stop driving but there are many other matters I am thinking about at the moment concerning my Parkinson’s disease so maybe It will strike me later.
Thanks.