Forum Replies Created

  • Susan

    Member
    July 7, 2023 at 11:46 am in reply to: Returned sense of smell

    I do the same smell test, especially in the spring. No significant change. I thought the DBS would have given me something back. Not yet anyway.

  • Susan

    Member
    December 30, 2020 at 7:52 am in reply to: Anyone have comments on We Have Parkinsons.com

    Hello!

    I’d say, yes, try it!

    I’ve been taking Restore Gold for 6-months, but not consistently…after the first 2-3 months I noticed a change in the distonia in my right foot (esp) and leg…I couldn’t sit too long to type at work and got a computer riser so I can stand and work… I stopped taking RG for a couple months when my neuro looked at the bottle and ingredients, said he sees nothing harmful and heard good things about the TUDCA, and remarked but they’re in to making money, also a friend said, “well the placebo effect is pretty powerful”. (Note: I had to drop to part time work due to Parkinson’s so my income cut in half, this along w/these remarks took the wind out of my sails.) So I laid off for a little over a month…the distonia crept back, I seemed to be regressing and began to require a 3rd dose of Parkinson’s meds. I’m back on the Restore Gold a month now w/no interruptions and starting to sense it’s working. The last 2-3 days I’ve been able to go without that 3rd dose of Parkinson’s meds (carbi/leva) successfully and the disturbing distonia is slowly receding. I went ahead and got more RG. I would recommend trying it. I’ve gotten the indigestion – food does help with that. I also started taking a tincture form of mucuna pruriens in the evening.

    I hope this helps, please let us know how you do on RG!

    All the best, Sue