Ruth MacKenzie
Forum Replies Created
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Hi Robert, thank you for the wonderfully descriptive words to describe the ‘progression’ of this most un-progressive disease! I imagine your sense of humour helps you cope.
I coped with the changes my body threw at me for the first few years with ‘deParkinial’, it didn’t make the symptoms disappear , but I told myself the symptoms were figments of my imagination, because, as you pointed out, you are still you, it’s just the body that has moving or shaking problems.
Do you have a word for the times that occur only rarely; when the planets are aligned, the meds are working, you’ve been able to sleep for more than four hours and there is no immediate stress looming; that you have a glorious hour or two so immersed in something that – for a while – you feel like you did – before PD?
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Hi, I’m from British Columbia where I have been able to obtain whatever cannabis I wanted for about five years. The only thing I have found useful is either CBD oil or CBD edibles with a 10% THC component. These are very effective for helping me get to sleep and staying asleep for more than three hours at a time, and I don’t get the horrible next day grogginess that I get from sleeping pills. I’ve been using the CBD edibles off and on for about four years, and I still get the same, good result with the same amount as I took to begin with, I have not had to increase it
i have tried THC in liquid, edibles, vape, and just lately actual smoke, but have never felt it did anything for tremors or stiffness, it does not relax me.
i use THC cream, 300mg of THC in a 50 ml jar, for pain in my feet (PD); and in my hands, (arthritis) and it relieves the pain almost immediately and lasts for hours.
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Hi,
My GP suggested I research the 40HZ sound waves because of the apparent affect in our brains, causing more activity. She wondered if the sound waves could be directed to the cells (neurotransmitters) affected by the unresponsive dopamine producers/transferrers, and assist them to return them to their original, working state.
Unfortunately, I found nothing that specifically pertained to PD. However, I will keep looking, since new methods etc, are being developed every day. -
Hi Ally, I live in (beautiful) Victoria, BC, so I’m relatively close to Toni. I moved here from Alberta in 1999 and was diagnosed in 2007
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Luckily I don’t feel I have a problem with apathy. That said, I have been taking venlafaxine every day since I had to stop working. I don’t know if that is what has helped me with apathy, but it has definitely helped with depression. I also meditate every day, and although some days it is very hard to make myself do my exercises and yoga, but I remind myself that I have every reason to push myself – so I can visit and enjoy my grandchildren for a long time to come, and to be able to do activities and travels with my husband.
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Hi Jean,
i have been noticing hair loss, and unfortunately had straight, fine hair to start with. Since my scalp is now visible on most of my head, I’ve started wearing wigs when I go out if I can’t back comb and spray my own hair into submission. I definitely think my hair loss is a PD symptom