Patty Stratton
Forum Replies Created
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All are correct. We work as a team. For 21 years I have been to every appointment, therapy, exercise group so that we remain on the same page. As time goes on it becomes more difficult and sometimes the frustration does get “shared” in a not so nice way. I admit that I too have shown my frustration a few times–I’m not proud of it…but it is a part of this horrible disease.
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My husband has done a couple of different programs such as Big and Loud, and The Voice Project. It does help, however one must continue to complete the exercises they teach you in order to have continual improvement. I think it’s important because communication is key. In The Voice Project they also work on cognitive exercises (games) that are fun and help to get the brain processing. Good luck to you!
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My husband was diagnosed in 2000. Initially he used nothing, but later on used a cane for many years. When that was not sufficient (due to freezing, and lack of balance) he used a rollator or standard walker you can buy at a medical supply store or even online. As time goes on he has needed more support, yet didn’t want to rely on an electric scooter (which we have and use when we go somewhere where it might be a long walk and he wouldn’t have the stamina.) Today we received the U-Step 2 walker that is much more sturdy, needs to have brakes disengaged by squeezing them to move forward and then will stop immediately when you let go. This is key when you are battling continual freezing episodes in order to prevent a fall. The U-Step 2 also has an optional laser to cue foot placement as well as an optional metronome. Medicare will pay a portion of the cost (although you must pay in full and will then be reimbursed) and the optional laser/metronome are to be paid by you. We were referred for the walker after a session of P/T and with Dr. signature. I wish good luck to all!