[Michel]

Hi Ally

I am part of a small group of PwP who regularly organise for speakers to talk to us about ways to manage our symptoms.  We had for instance Jimmy Choi talking to us and next week we have the CEO of Vielight talking to us about the photobiomodulation.
is it okay to share the details of those events on the forum?   There is just zero commercial angle here, just a desire to share knowledge with a bigger group of people who may benefit from it.
Thank you very much

Michel

[Michel]

Hi Kam

Thank you very much for your message.

My post has indeed triggered some interest from similarly minded people who consider non-pharmaceutical options as critical to our well-being. To be clear, I am not anti pharmaceutical drugs at all, but would like to delay taking them as much as possible and, if I have to take them, make sure that they are not the only solution but are part of a wider, integrated approach.  Hopefully, with such an integrated approach, doses of pharmaceutical drugs can be minimised and can be extended over time as much as possible.

I will reach out to the moderators and see what are the best options to stay in touch as a group on this topic.

All the best

Michel

[Michel]

Hi Carolyn,

It is interesting to look at acupuncture as a one of at least three approaches to meridians in traditional Chinese medicine (I’m still relatively new to this!). The recent events have made it more difficult to utilise acupuncture. Similarly, acupressure is something I would like to try but it’s a tiny bit off-limits right now.  The third approach is qigong healing and I’m lucky to have found a qigong master in the UK who helps me from that angle. I am personally also using qigong as meditation, which is easier than tai chi.

Michel

[Michel]

Hi Mary Beth,

It is a very complex topic but an interesting one…

To the extent that holistic means integrated, then some multi pronged approaches fall in that category.  On a slightly more esoteric note, has anyone ever heard about the law of attraction?

It is the idea that our thoughts can influence outcomes eg make us sick as well as help us recover (or can change other outcomes in the quantum world of infinite possibilities).  I think that instinctively most of us will be ready to believe that negative emotions can create illness. However, possibly fewer of us would dare to say openly that positive thoughts can make us better, especially when approaching complex diseases such as PD.
I am personally very open to such approaches and aim to put them in practice through meditation.  I have several experienced partners in this area, who have practiced and taught meditation for many years.  This is often associated to concepts such as remote healing that probably gets close to what you referred to.

[Michel]

Hi everyone

I want to thank you for all the additional contributions that I only discovered today (I have been missing a few recently, please accept my apologies for the radio silence). I have just attended a PD Tutorial by two senior nutritionists who advocate an integrated approach to the disease. Interestingly one of their key focus points is cell energy.  For whatever it’s worth I am planning to try to stay away from L-dopa until I really need it. If/when I do, I will aim to start with a minimum efficient dose of natural L-Dopa. In the meantime I will keep on focusing on my diet (it is pretty scientific and rigourous nowadays), exercising (walking, yoga and Pilates mainly) and meditation (including qigong and autogenics).  There have also been many interesting recommendations through this forum that I will investigate over time.

PD is still a recent journey for me and I will give updates to everyone if there is anything worth reporting.

In the meantime I would like to thank everyone once more for being so helpful in responding to my enquiry.

Wishing all the best to everyone.  Michel

 

[Michel]

Hi Joel,

Thank you for your response, encouragements and suggestions.  You are perfectly right to mention inflammation and I am approaching this issue via supplements (turmeric, omega 3) and generally by reducing my stress levels via several types of meditation (inc. qigong, autogenics ets) as adrenaline is the enemy.
There is a Chinese herb I wanted to mention here in case anyone is interested or has experience with it. It’s called gou teng and although I have bought some in the US I must confess that I haven’t used it yet. I am joining an article from the New Scientist that tells you all about it.
https://www.newscientist.com/article/dn20584-chinese-medicine-offers-new-parkinsons-treatments/

I hadn’t heard about Lion’s mane so I will have a look. Thank you also for the suggestions on light therapy.
Wishing you all the best.

[Michel]

Hi Amy.
Thank you very much for your post.  I am really encouraged by your experience.
I have now come across the idea of fasting on several occasions and will definitely look into this.
in the meantime my diet is gluten, sugar, dairy, red meat and alcohol free. I consume proteins from poultry and eat oily fish… I miss a good beer or wine especially on Friday nights but found it easier to go totally off alcohol.
Would love to stay in touch with all those who kindly responded to my post and are focusing on “soft medicine “ in addition to pharmaceuticals.
Good weekend to all.
Michel

[Michel]

Thank you all for taking the time to respond to my post, I very much appreciate it.
<p style=”text-align: left;”>I like the fava beans so I will keep on with them, you can also find them in humus.</p>
<p style=”text-align: left;”>It really looks like every situation is different which is also an encouragement to keep an open mind.</p>
As far as I’m concerned I am maximising exercise including yoga, Pilates, walking and cycling.  I have totally changed my diet and dropped all dairy products, fatty ingredients, sugar, alcohol and gluten.  I also have a dietician who has prescribed me several supplements.

To be perfectly frank I’ve only been doing this for a few months so it’s early days. I will keep everyone informed if I come across any major breakthrough!
<p style=”text-align: left;”>Wishing you all the best.</p>

[Michel]

Thank you all for taking the time to respond to my post, I very much appreciate it.
<p style=”text-align: left;”>I like the fava beans so I will keep on with them, you can also find them in humus.</p>
<p style=”text-align: left;”>It really looks like every situation is different which is also an encouragement to keep an open mind.

As far as I’m concerned I am maximising exercise including yoga, Pilates, walking and cycling.  I have totally changed my diet and dropped all dairy products, fatty ingredients, sugar, alcohol and gluten.  I also have a dietician who has prescribed me several supplements.

To be perfectly frank I’ve only been doing this for a few months so it’s early days. I will keep everyone informed if I come across any major breakthrough!</p>
<p style=”text-align: left;”>
Wishing you all the best.</p>

[Michel]

Hi from London…

Everyday: one hour home fitness/pilates + one hour yin yoga + one hour walk to my favourite Wimbledon Park…

Cant wait fo the gyms to re-open (and the hairdressers!)

Michel

[Michel]

Thank you very much Gail, this is very encouraging. I believe that, although science may one day find the silver bullet, in the meantime a systematic approach can be succcesful. Your experience definitely seems to support that view.  Thanks again for your input.