Forum Replies Created

  • Judy

    Member
    July 27, 2021 at 8:39 pm in reply to: Have you tried any devices that help with Parkinson’s symptoms?

    My husband uses a devise called The Breather to exercise his throat muscles.  Really very effective.

  • Judy

    Member
    December 10, 2019 at 11:09 am in reply to: Is anyone using INBRIJA, a new nasal delivery system for Levadopa

    My husband has been using Inbrija for months.  We have found that you can predict off periods ( just keep a diary).  Then take the Inbrija about 30 minutes before.  It is a gap medicine – bridge the gap between regular meds.  In my husband’s case he takes the Inbriha about an hour before his next dose of Rytary.  So three times per day – however you can take it 5x per day.  Helps with walking, ba ok an CD email, gait.

  • Judy

    Member
    November 28, 2019 at 11:20 am in reply to: Humorous happenstances exacerbated by my PD symptoms.

    So my darling hubby (PD 10 yrs) took a hard fall in The kitchen where he had been making turkey soup from the carcass remains from early Thanksgiving Potluck at church.  I rushed in from the office, see him on floor in unnatural position.  On high alert I say “Honey can you get up? “  He tried to push up on hands, as head left the floor a  pool of blood grew under his head.  He lowered himself back down and basically passed out.  As I reach for my cell phone to call 911 I hear a voice saying “Hello, Hello”.  Not from my cell – no other phone nearby.  Voice becomes insistent- “is anybody there?” it says.  Finally I figure out that the voice is coming from my husbands very limp left hand.  So I say to his hand “Hello???”.  The voice says “ This is EMT, Is there an emergency??”.  “ Yes !!!” I say to his watch!  Hmmmm…   his smart watch had detected a hard fall, had tried by vibration and noise to wake him up and get response – receiving neither the sweet smart watch had called 911!  They even knew our address as we had registered earlier.  They were there in 3 minutes – off to ER We went.  Thank You Smart Watch!!!  BTW – I had his current meds list in my hand.  Not a perfect day – but preparations paid off.