Parkinson’s News Forums › Forums › Parkinson’s Treatment › Therapies and Medications › Is anyone using INBRIJA, a new nasal delivery system for Levadopa
Tagged: inbrija fava
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Is anyone using INBRIJA, a new nasal delivery system for Levadopa
Posted by cannabist on December 5, 2019 at 6:10 pmIt’s for bad OFF periods. I saw an ad for This new drug and asked my Dr about it. It’s fairly new. Has anyone been using it?
carol-rothfeld replied 4 years, 3 months ago 7 Members · 18 Replies -
18 Replies
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Deleted User
Deleted UserDecember 6, 2019 at 7:24 amhi dave i have heard of it but do not experience bad off periods…. yet. i image if it is new, it is probably very costly and medicare probably doesnt cover iet:-(
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The support group that I go to had a rep from Acorda the pharmaceutical company that makes INBRIJA come to our meeting to talk about the drug. It is an oral inhalation form of levodopa. It comes in a capsule that you put in the inhaler. Then you inhale it through your mouth. One of the ladies in the group uses it and she said its a powder and that it took her a couple of times before she got used to the feeling of the powder. But she said it was helping with off times for her. I’m not sure what the cost was but I will ask her when I see her and report back.
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Deleted User
Deleted UserDecember 7, 2019 at 8:08 amRoseanne, thanks for your input. it is good to hear you know of someone that had good results.
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Greetings again,
I received my sample INBRIJA package Saturday. I used it twice Sunday and once this morning. First account, seems to make a difference;peppier and my legs don’t ache.
Weird ingenious device. A capsule of powder is placed in a sleeve. you prick the capsule and inhale the powder. It is tricky to figure the amount of breathe to inhale. Too much you cough.
Well so far, unless it is a rebound effect, seems like a good product. There are a bunch of warnings, so I’m being careful, but it is only 42mg of Levadopa per dose.
I’ll be back. Watch this space.
C
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Deleted User
Deleted UserDecember 9, 2019 at 12:49 pmdave, keep us posted…not sure if i am a fan of the powder inhale. it doesnt take me much to go into a coughing fit LOL.
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My husband has been using Inbrija for months. We have found that you can predict off periods ( just keep a diary). Then take the Inbrija about 30 minutes before. It is a gap medicine – bridge the gap between regular meds. In my husband’s case he takes the Inbriha about an hour before his next dose of Rytary. So three times per day – however you can take it 5x per day. Helps with walking, ba ok an CD email, gait.
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Deleted User
Deleted UserDecember 10, 2019 at 1:29 pmjudy, excellent that you and your husband have found a good plan that works…
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First, check with your pharmacy to see if Inbrija is available because it isn’t at any of the ones near me or at Optum RX where I get my regular, mail order meds.
Second, check with your insurance to see if it is covered because it isn’t by my United Healthcare plan.
Third, how do they come up with these drug names?
Hope you have better luck than me,
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Deleted User
Deleted UserDecember 10, 2019 at 9:22 pmMark, it seems most USA insurance companies do not cover the new drugs as they r very costly. Sometimes if ur doctor files an exception to the company’s formulary, they may cover it Call them and see if they would do that if your dr. Indicates medical necessity
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Deleted User
Deleted UserDecember 11, 2019 at 11:21 amdave, good advice.. thnx
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Let me make 1 correction. This is an oral inhalant. One puts a capsule into a sleeve and puncture it with the cap.. Then breathe in. There is a fan inside.
I’m finding it difficult to control coughing. you’ve got to relax the cough reflex and inhale slowly. I must say though that the drug seems to work well and helps me get my legs moving in morning.
I’ll be back
C
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Deleted User
Deleted UserDecember 12, 2019 at 6:24 amdave , i am glad it is working well for you. it is a great triumph when we can find something that improves our quality of life.
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I’ve found a simple treatment for off periods. I eat a bag of fava beans. They are made by the good bean and cost about fifty cents per bag on Amazon. They also make tasty snacks and people have no idea why I am eating them.
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Deleted User
Deleted UserDecember 12, 2019 at 1:55 pmBarry, i like that better than taking a drug . Is this what you are talking about: what is your favorite flavor?
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Hi All,
I am finding this a good product, however this delivery system sucks (no pun intended. 20% the time I cough They say if you cough it up, use a new capsule. That’s great for them, but 1 1/2 hits seem to work fine.
TaTa
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Deleted User
Deleted UserDecember 14, 2019 at 2:26 pmdave, i think the delivery system would turn me off too, although i may feel differently if i start experiencing a lot of off time. first i need to have up time. desperately seeking that…
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Yes, I tried it INBRIJA. It is inhaled and not through the nose. I had a problem inhaling the powder and stopped. I am now using Apokyn which is injected subcutaneously, much like a diabetic injects insulin. I also take Tigan, an anti-nausea medication about two hours before the Apokyn. It has made a world of difference in the off times I experienced every morning through early afternoon.
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