@jcarter
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John Carter replied to the topic What's your most bizarre symptom? in the forum Parkinson's Disease Symptoms 1 year, 7 months ago
Jeanne, what I have been doing is to take my normal dosage at about 6 o’clock a.m.(2 CL pills). I then go back to sleep for about two hours. When I wake up, I feel pretty good; not wobbly. An ten o’clock, I take one tablet and do this every two hours until about 4 o’clock p.m. I’ve got a good doctor and he is okay with this approach. I try to…[Read more]
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John Carter replied to the topic Finding Ways to Move Forward in the forum Diagnosis Information and General Questions 1 year, 8 months ago
Yeah, some days are worse than others; on really bad days, focus on anything and everything you can do today to make tomorrow better and then do at least one thing today to get ready for a better day tomorrow.
And after you do one thing, I bet you’ll find you can do two things. Keep moving; your not alone. When your having a bad day you can be…[Read more] -
John Carter replied to the topic What's your most bizarre symptom? in the forum Parkinson's Disease Symptoms 1 year, 11 months ago
I was diagnosed with PD in early 2018 and began taking carbidopa levodopa. For the first 12 months or so, I wasn’t sure if it was helping or not. And then I begin to notice something strange (to me a at least). About an hour or so after taking carbidopa levodopa, I become somewhat disoriented with slurred speech; this seems to last up to, two…[Read more]
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John Carter replied to the topic The beginnings of tremors in the forum Parkinson's Disease Symptoms 1 year, 12 months ago
Hello Ian, I began noticing weakness in my knees two to three years before I was diagnosed with PD. When I got on my mountain bike and began to ride, usually with my wife, I would feel a distinct weakness under my patella on both knees. The faster I would pedal, the more noticeable the weakness would become. I wasn’t too worried about it, because…[Read more]
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John Carter replied to the topic The beginnings of tremors in the forum Parkinson's Disease Symptoms 1 year, 12 months ago
Ian, it is curious about the commonality of the left-hand and the early motor symptoms; I am right handed by the way. I’m taking carbidopa levodopa. I don’t seem to derive a significant benefit from it, but I know when I don’t take it, I tend to get cramps in my legs, particularly in the evening. One Motor symptom that was pretty obvious before I…[Read more]
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John Carter replied to the topic The beginnings of tremors in the forum Parkinson's Disease Symptoms 2 years ago
Ian, I was diagnosed with PD in 2017 at the age of 70. Of course now I realize I had PD motor symptoms much earlier. As I recall I had some type of resting tremor with my left hand; it was most noticeable when I awakened in the morning and then it would diminish and go away in an hour or so. I still have it, but the morning tremor is a little…[Read more]
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John Carter posted an update 2 years ago
Relative to choosing an MDS or a neurologist; I would go with someone who has contemporary knowledge and experience with drugs that are used to treat various symptoms of PD.
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John Carter replied to the topic What do you do to prevent yourself from falling? in the forum Living With Parkinson's Disease 2 years, 2 months ago
I’m 74 and have had PD related balance issues for the past couple of years. And I have fallen several times; fortunately no hospitalization was required. So, I try to focus on good posture and avoid the forward leaning stoop. When walking, I consciously try to keep a slow pace and make sure I put my heels down first. When I get out of sync, I stop…[Read more]
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John Carter replied to the topic Do you still have access to some form of exercise? in the forum Parkinson's Disease and exercise 2 years, 2 months ago
April Sargent is an experience exercise therapist who has been working with individuals with PD for years ( [email protected] ). April hosts a Zoom class 3 times a week from Santa Maria, California. It is an excellent class I recommend it highly.
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John Carter became a registered member 2 years, 2 months ago