Joanna
Forum Replies Created
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Yes! Absolutely! You are entitled to accommodations! If your employer has a problem with that, that’s called discrimination. Furthermore, why hide your PD? Personally, I’m glad to explain why I am the way I am.
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No I have not. I can’t find people who still work full time and have a positive outlook. It’s also difficult to find community that meets in the evenings, and any Parkinson’s programs are always during the work day. Very frustrating.
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The last time I saw my neurologist, he didn’t want to see me for a year, but he’s always available for questions via messaging. He feels like I am doing very well and very little progression.
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<p style=”text-align: right;”>It’s not clear from your answers, but it sounds like it’s medication side effects v PD?</p>
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I was diagnosed in November of 2021, but have had symptoms since 2014. I started on Rasagiline (generic for Azilect)Â a year ago, and within 1 week I noticed a major difference. I have an overall sense of calm. The fatigue and depression dissipated. No more brain fog. I have normal energy again. I feel like myself now. I can write again, too. My tremors aren’t gone, but mostly are not there. Only when I’m cold or nervous. Also, this is the only medication i take. My understanding of this medication, is they believe it might slow down progression of the PD. It appears you have experienced that. My neurologist is quite pleased with where I am, and has told me I should expect little to minor progression at this point, since I have stabilized. I have zero side effects, too.
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Right toes clenching. Restless leg. Internal tremors. Slight external in right hand. Slow movement on right side. Right hand is weaker with stiffness. Right arm doesn’t straighten anymore. Voice is changing. Sounds raspy. Speech can be slightly slurred sometimes. Constipation. Unpredictable digestion. Sense of smell mostly gone, but some days are better than others.
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I’d like to see a lot more positive topics, instead of always dwelling on symptoms. I’d also like to see more topics on exercise and natural remedies, and a focus on staying positive. Of how to be a winner in this. I’d also like to hear from people who are still working and/or living life to its fullest. I’ve been following this forum for awhile, but once I see topic headings, I delete my email.Â
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Yes of course! I’ve had Covid, and don’t ever want to go through that again. I’ve also gotten my Flu shot,
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Jackie I’m 58, was diagnosed in 2021, but have been living with symptoms since 2016. I live life. I don’t focus on Parkinson’s. I’ve adapted where necessary, but it does not dominate my thoughts or my life, and I refuse to let it. I fully believe that’s why there’s been minimal progression. Dopamine is the reward center of our brain. I choose to feed that center with positivity. It’s hard to find that in a group. Also, I couldn’t find that group you mentioned.