Kevin
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Follow up to the above reply re mannitol with some links and info for those who wish to peruse! Sincerely,Kevin S. Lewis, Medically Retired Veteran
Whats included in this post is not medical advice and should not be construed as such – these posts are for informational purposes only – all changes to a treatment plan should be under supervision and consultation with your chosen medical provider!
PS Item’s posted/sent may or may not be mine and I may or may not agree with them. I am passing along things that make me think – I hope they do the same for you.
View – https://groups.io/g/DietAgainstDisease
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Go to < http://www.lewboski.net/ > for more information about Lewboski and what he did before getting cancer!
“We are not human beings having a spiritual experience. We are spiritual beings having a human experience. We are each of us angels with only one wing, and can only fly embracing each other.” Pierre Teilhard de Chardin, (1881-1955)
“There are two ways to be fooled. One is to believe what isn’t True; the other is to refuse to believe what is true.” Soren Kierkegaard, Philosopher (1813-1855)
“Every day you may make progress. Every step may be fruitful. Yet there will stretch out before you an ever-lengthening, ever-ascending, ever-improving path. You know you will never get to the end of the journey. But this, far from discouraging, only adds to the joy and glory of the climb.” – Sir Winston Churchill, “from the essay ‘Painting as a Pastime’, published at the end of Thoughts and Adventures.”
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Gesus – my post with a link to google scholar is awaiting moderation – if it doesn’t get posted it will be two out of 4 posts censored in the last week?????
Guess its time to leave this place!
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while my second post remains in moderator hands – I will add that – there is a bunch to know about the immune system and the gut brain connection – the lymphatic and the Glymphatic systems and how helping them drain properly will help the immune system with detoxification which is also something we all should know about – I could go on for days as its taken me several years of arduous study to amass the information in my head – much of which is posted at the sites linked in my second post awaiting moderation – but again – research and consultation are mandatory to make progress instead of standing still which frequently results in sideways falls – so – keep moving forward – the person that mentioned the genetic form represents less than 10% of cases – the rest are idiopathic and as Dr. Bruce Lipton – a genetic/cellular biologist who studied stem cells in the 60s reports that disease is much more environmental than we have been told which suggests that we need to take a good look at our water source – our air and our food – glyphosate is deadly to our gut bacteria – Monsanto knew it when they applied for approval by the FDA and didn’t say anything about it – much more to say about that but if your eating GMO foods your eating roundup – poison to all beings be they anything with the shikimate pathway – just food for thought! I guess I have more energy today than usual and with the unprecedented heat up here in Washington I couldn’t play golf so – here I am – any replies I will get to as time/energy permits!
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I graduated from hospice after 18 months – no better but told there was nothing else they could do for me so – as a previous medical provider I started my research – in doing so I found a book called minding my mitochondria by Terry Wahls – she was a VA practicing provider who went from riding her bike 18 miles to work to a WC in 6 mo – it took her 5 years to get out of the WC and start riding her bike again – in it she recommends a strict diet and many supplements – NAC or N-Acetylcysteine is an antioxidant the helps produce mitochondria as well as increase the production of glutathione – glutathione is the master detoxifier in the brain – antioxidants like vitamin C and many others help reduce ROS or reactive oxygen species – but I believe the major affect is producing mitochondria – there are between 1 & 3K in each cell in your body – alpha synuclean affects pretty much every cell so taking it at the recommended dose of 1GM 3 times a day has been one of the things I do for years now – 6-7 since I got off hospice – I have a Parkinsons Plus disorder called MSA or Multiple systems atrophy – I also found mannitol helpful – I took it as recommended above but the brand I got included caffein in the ingredients as the studies I found included that – I also found a study that reversed disease in 5 of 7 patients using IV Immune Globulin – I’ve been getting that every 4 weeks for years as well – I take a boat load of supplements but do not take sinemet or any kind of levo-dopa – when I was first diagnosed with Parkinsons I tried it for several months on escalating doses and knowing the long term risks of continued use and no benefit decided to stop it – at one point I was on 3 drugs to raise my blood pressure – I am now on only one – I also found a study from Korea indicating that the reportedly dead neurons in the substantia nigra – mid brain – specifically the caudate nucleus and putamen are not dead but in a senescent state and or asleep waiting to be awoken – they reversed disease in mice and I believe I am doing the same – I can – with a cart – play 18 holes of golf – last summer I walked 9 holes and hope by the end of this year to walk 18 on relatively flat courses of course – I believe and this is my personal opinion – that this disease can be reverse and most would say I am living proof of that – I still have issues and diet clearly is a major component – barrier disruption and disbiosis are major players in this and altho my earlier diet was as recommended by Dr. Wahls I have since gone more ketogenic as sugar – not to saw mannitol but most others sugars – lots of different names for that – produce insulin – insulin is toxic to dopaminergic neurons while ketones or beneficial – ketone strips are available at most pharmacies and super stores – I would also suggest PH strips as most will be found highly acidic – there are various ways to alkalinize your ph – everyone should also be tested for their vitamin B12, D3 and magnesium levels and adjust accordingly – I researched vitamin D3 heavily and found that the recommended level is artificially low – everyone should be at or above 100 – those are just some of the things I’ve done for myself and are in no way medical recommendations – I will included my name – website and a few links in another message as I think they might be deleted from with this message and I wouldn’t want that – hope is available to us all if we look for it – peace and be well to all – sincerely – Kevin
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again – not sweating the small stuff – 4 of the same responses – LoL
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I said you were so right – your suggestion re humor and not sweating the small stuff is a major part of a healthy lifestyle – but – included a link to Dr. Bruce Lipton’s talk about autoimmunity and disease modification – its free for another day or so from hay house who may be selling their talks – lol – not sweating the small stuff
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Near Seattle, WA – USA – doing more traveling tho so – born in Oregon – love the Great Pacific Northwest – also love the south – Florida and the Bahamas are my winter go to places – spending the month of December down there – three weeks in Cancun late Jan/Feb – diet against disease @ [email protected] takes time but can be done anywhere in the world – practicing medicine before a Parkinson’s Plus Diagnosis lead me to research and a bunch of changes in my lifestyle and supplementation etc etc etc – guess thats enough for the moderators who are asking questions about everyone but happy to answer if you have any for me! Enjoy,
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posted a reply to Jean but it appears it did not go thru – are links not allowed in these forums?
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too funny jean – that was cute – thanks for the humor
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Sorry Jean for the Gene – auto correct caught me unaware
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Thanks Gene and your welcome – Im part of Bastyr’s online study re diet and parkinsons but – I did not know they had an event this summer – I saw one of their talks done in Australia tho recently on youtube – it was fantastic – I believe they are doing what im doing as ive sent most of my info to them but don’t get anything back – lol – I started doing it 7-8 years ago and at that time was reading research on the biome and its contribution to autoimmune disease & mitochondrial disfunction which is nearly all disease including parkinsons but do not think many folks were working along those lines back then – hope you are doing well
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there are many things to use to fix the gut lining and the gut bugs – there are good bugs and bad bugs – the good ones make most of your dopamine and all of your serotonin among everything else your body needs to work correctly – when it doesn’t get what it needs it starts to malfunction – feeding the good bugs with pre Biotics which is simply lots of cruciferous veggies – different colors – lots of variety – must be organic and even then some will have glyphosate or preservatives if you buy it in the bag – they use lots of tricks to get sugars and other harmful stuff into you – artificial sweeteners are Neuro toxins like inhaled or aerosolized chlorine and fluoride – water filters and shower filters if you don’t have a whole home filter R/O only – adding minerals to filtered water is essential – selenium chlorella and spirulina help with ROS (reactive oxygen species) which affect every cell in your body as does Alpha synuclean – Manitol helps as an over the counter cell wall permeability assistant – in Parkinsons the A-Syn clumps in the cells and destroys the mitochondria while make the cell wall impermeable – there are so many things you can do to help yourself besides exercise which is mandatory but – if you don’t know your B-12 level – your D-3 Level – your Magnesium level – all of these are low in Parkinsons patients – the vitamins like C you cannot take too much – all the antioxidants are needed but especially NAC – it helps increase mitochondrial production and glutathione production which is the major brain detoxifier – helping the Glymphatic lymph system in the brain to drain as well as lymph brushing in general with good hydration is necessary – man – I could go on forever – I just wanted to comment on the gut persons question – yes lactobacillus is one of the gut bugs but there are thousands – there are currently about 5 of the good gut bugs absent in Parkinsons patients ramnosis comes to mind as one (sp) this is pretty common knowledge in research circles – if you use scholar.google.com you should be able to find everything you need to know about fixing the gut – replenishing the good bugs and beating back the bad ones – balance is key with all of them – they’re DNA out numbers ours 99-1 so be kind to our gut bugs and they will be kind to you – getting tired since I’ve been writing most of the day while trying to get thru email and digitizing albums so gonna say good day to you all – think that it took you a lot of years to get here – I expect to live another 30 years or so – I started reversing disease and leaky gut and dys-biosis and neuronal senescence of the dopaminergic neurons 6-7 years ago – after getting off hospice – I started playing golf again last year – I turned 64 last month – everyone calls me a walking miracle and I say it was a miracle I survived life to live long enough to get sick and then live long enough to get better – still working on the last part!
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Oh – be careful with activated charcoal – it can bind medications too so take those when your not taking the charcoal!
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I too am a vet – 100% Service connected altho they do not consider those on the DMZ in Korea agent orange victims – surface contamination for 10-15 years while digging will get you Agent O for over 100 years – all those fox holes – spraying around camp blah blah blah – you prolly got 100% automagically – I had to fight with them for 8+ years and now – well – like I said – I can walk short distances – my balance isn’t very good – my blood pressure remains low with the meds but I don’t want to take them all – my feet swell up like balloons – anyway – there is a lot to do for detoxing your entire body – figure out your transit time and if its less than 24 hours start a detox regimen – don’t buy a liquid you drink – it takes lots of things but once started you need to bind the toxins with activated charcoal or you will reabsorb the toxins and get sicker – that is the short story – the long one will be in a book some day!
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come on – google scholar link gets the whole post censored?