Forum Replies Created

  • Don Weber

    Member
    December 9, 2020 at 2:52 pm in reply to: How have your holiday plans been impacted?

    Hello Mary Beth. We usually get together the Sunday before Christmas. The family,  grandkids, grate grandkids, and spouses. Between 60 and 70 people. We did this when, Dad and Mom were alive,  and continued on till  this year. We are talking about  doing Christmas in the Spring,  if the Virus is controlled.  This Family hasn’t had a good year, our youngest brother died, our sister is to have surgery in December, I had skin cancer, and the Virus. This year needs to end quietly and quickly. Don Weber                                       Merry Christmas Mary Beth

  • Don Weber

    Member
    October 14, 2020 at 10:06 pm in reply to: Have you experienced PD hallucinations?

    I had visions of my grand daughter doing dangerous things in our house. I would yell at her stop as should get hurt. These could happen any time of the day. My wife brought me out of this by pointing out the grand daughter was not in the house. The girl was between 2 and 5 years old and the years between 2013 and 2016. The grand sons never were a part of these visions. The boys were 4 and 8 years older than the grand daughter. I was first  diagnose by my Pain Doctor in 2018,and by a Neurologist in 2019. My medical history is bad from 1990 to the present time. (3 Back operations 1993-Kidney Cancer 2003-2 Back operations 2004- Right Knee Replacement 2005- Spinal Stimulator 2006 -Hernia Repair 2007 – Repair Left Knee 2013 – Pace Maker 2017 – P.D. Diagnose 2019). Don Weber

  • Don Weber

    Member
    September 18, 2020 at 10:45 am in reply to: When did you first suspect that you had Parkinsons?

    I began to think I had PD when my Pain Doctor ask me every visit if any Doctor said I had PD. The answer was always NO, through part 2018 and all of 2019. The Advanced Practice Nurse, who had been my neurologist for about 5 years,told me that I would meet the new Doctor at my July 2018 Visit. During the July visit I ask her directly if I had PD, and the answer was she could not make a diagnoses as I was taking PD medicines. I had a visit with my Primary Doctor in November of 2019 and I ask him if I had PD. He brought up records of my visit of July 2018 with the new neurologist,her diagnoses PD. He then got me a visit with a neurologist in his group for December  2019,her diagnoses was also PD. I could finally answer the Pain Doctor’s question with YES I have PD. I have a Pain Doctor because I have a Spinal Stimulator, that he implanted,because of failed back surgery.

  • Don Weber

    Member
    September 2, 2020 at 10:13 am in reply to: Did you experience tinnitus before being diagnosed with PD?

    I have tinnitus in both ears. The sound goes up and down and at times goes away,only too return.When it returns it usually brings a migraine along. The Neurologist put me on Propranolol 3 times a day stopping real bad migraines and reduced the lighter ones. My Pain Doctor  told me he was certain I had PD,in 2018. I had the Pain Doctor’s certain  confirmed by 2 different Neurologist in 2019. I had tinnitus about 35+ years and i’m 77 years old. Don W.

  • Don Weber

    Member
    August 25, 2020 at 7:30 pm in reply to: What’s your most bizarre symptom?

    Marlene, I have migraines,arthritis,sleep problems(Use a CPAP),asthma, a pacemaker,and several orthopedic issues,and PD.  I have have screamed at my granddaughter that she was going to fall off the couch and hurt herself the problem is that she wasn’t at our house and was at school. I have seen people and heard things these people said at different times day and night and nobody is there. This problem also involves seeing things that are not there. these problems come and go.