Dick Boynton
Forum Replies Created
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My wife and I just flew from Connecticut to Vancouver, Canada. Two days later my wife had a very high fever and was very confused and fatigued. I gave her a COVID test and she was positive. The local doctor recommended that she stay in bed but not take any medicine, since she has had four COVID shots. She is much better today. She is 77 years old and I am 89 years old, and we both have Parkinson’s.
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I used Roundup for many years to kill my poison ivy and bamboo. Five years ago I got Lymphoma. Luckily I survived this. Then last year I was diagnosed with Parkinson’s.
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Toni,
I tried Amantadine but it made me sleepy. I fell asleep twice while my Tesla was driving at 80 mph on the highway !!. My wife was sitting next to me in the passenger seat and woke me up. I have stopped taking this drug and now have been using a cannabis gummy. This helps but makes me a little spacey, so I only take this when I am home watching TV. At night my legs get going as soon as I get in bed. This is very annoying and keeps me from falling asleep.
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Katherine,
I just finished writing to Toni about my akathisia and then I saw your response. As I wrote Toni, I have an urge to move all the time. It’s particularly bad when I get in bed and try to sleep or when I watch TV while lying in my recliner. I tap my feet together violently. I can stop if I think about it, but it starts the moment I think of something else. It’s like restless leg syndrome, but it is a repetitive motion that can go on for hours. One way I can stop it when I want to sleep is to make my legs move so strongly that I am exhausted. Then I have a brief respite that allows me to go to sleep. I don’t appear to do this when I am sleeping. Another way I can stop it temporarily is to meditate, but as soon as I stop meditating, then it comes back. I also bite my lower lip extremely rapidly. I bite it at a rate of about 15 bites per second. I can wear a mouth brace to stop this. My doctor thought these might just be other kinds of tremor, but tremors are not as vigorous.
I’ll suggest your solutions to my doctor and let you know what happens.
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Tony,
You mentioned <span style=”text-decoration: underline;”>akathisia</span>. I had never heard that word, but when I looked it up, it described my condition. I have an urge to move all the time. It’s particularly bad when I get in bed and try to sleep or when I watch TV while lying in my recliner. I tap my feet together violently. I can stop if I think about it, but it starts the moment I think of something else. It’s like restless leg syndrome, but it is a repetitive motion that can go on for hours. One way I can stop it when I want to sleep is to make my legs move so strongly that I am exhausted. Then I have a brief respite that allows me to go to sleep. I don’t appear to do this when I am sleeping. Another way I can stop it temporarily is to meditate, but as soon as I stop meditating, then it comes back. I also bite my lower lip extremely rapidly. I bite it at a rate of about 15 bites per second. I can wear a mouth brace to stop this. My doctor thought these might just be other kinds of tremor, but tremors are not as vigorous. My wife also has Parkinson’s, and her tremors are mainly in her hands and have a rotary motion when she is resting. So thank you for educating me. I’ll discuss this with my doctor at my next appointment.
Another thing you mentioned is constipation. I suffered from this for several years, and none of the standard cures such as Miralax helped me. Then a doctor told me the perfect solution: eat three prunes a day. Once I started this, I never had a problem again. Apparently prunes contain a chemical that softens the stool so I can expel the BM.
Richard