Forum Replies Created

  • Chris Guss

    Member
    September 9, 2022 at 7:46 am in reply to: Body odor

    Yes, there is a Parkinson’s body odor that has just been confirmed as diagnostic. Check out the recent episode entitled, “A 3-minute test for a Parkinson’s diagnosis” on the “When Life Gives You Parkinson’s” podcast: https://www.parkinson.ca/resources/when-life-gives-you-parkinsons-presented-by-parkinson-canada/

  • Chris Guss

    Member
    June 28, 2022 at 8:16 pm in reply to: FGF-1

    I have also been on the Zhittya zoom calls and also have mixed emotions. CEO Dan’s diatribes about the FDA, how much money they have already invested, and even announcing that he dosed himself with FGF-1 appear to me as unprofessional and discrediting to the overall cause.

    On the other hand, I find the fMRI images of vascular growth intriguing and the hypothesis that alpha synuclean accumulation is due to vascular damage worthy of investigation.

    I would like to see pre and post imaging of vascular changes in future volunteer subjects as well as continued follow-up with the 2 subjects presented on the last call.

    I wish everyone involved only the best and am grateful for their efforts. I look forward to future updates.

  • Chris Guss

    Member
    December 22, 2021 at 7:45 am in reply to: Light therapy

    Do you mean full spectrum light for circadian issues or Red light for mitochondria support? (see https://www.wellred.com.au) I use a therapad as a head wrap for a daily red light treatment.

  • Chris Guss

    Member
    October 8, 2021 at 10:25 am in reply to: Mannitol Updates? Does it even taste sweet?

    In response to the previous questions about mannitol dosage, the CliniCrowd website offered the following suggested dosages:

    ~20g per day. Above 20g per day, it may have a laxative effect

    Their film, My Disease, Our Revolution (2020), was available online here:

    https://tubitv.com/movies/591127/my-disease-our-revolution

    Ally also interviewed them last year. Here’s the youtube link: Interview with Dr. Daniel Segal and Amir Sadeh About Mannitol, a Potential Parkinson’s Treatment – YouTube

    One of my favorite moments is when, Dani says something to the effect that We know that Parkinson’s starts in the body maybe 20 years before detection, so don’t call me up after a couple of days to tell me that Mannitol doesn’t work! Give it at least 6 months. CliniCrowd was originally set up as a website to track your progress, but I don’t believe that the site is currently maintained.

    I currently take 10 gm each morning in my tea and have for about 90 days so far.

    Good luck to you all.

  • Chris Guss

    Member
    August 3, 2023 at 8:55 pm in reply to: B1 thiamine Therapy

    Daphne Bryant runs the B1 HDT facebbok group that you mention. Her book, Parkinson’s and the B1 Therapy, is available on Amazon and the profits are dedicated to funding a proper double blind placebo trial. Aside from the facebook group, she regularly responds to posts on healthunlocked.com.

    I have been taking B1 100mg as a sublingual for over a year and am among the thousands of PWP that feel it has significantly helped.

  • Chris Guss

    Member
    April 7, 2022 at 3:39 pm in reply to: Light therapy

    I use it for 20 minutes daily on the dual spectrum (660 & 850nm) flashing mode for maximum power. After 15 months, its hard to say if its working, since I am attacking the disease with other therapies as well, but its easy enough to do. I intend on continuing to use it. The price continues to drop on Amazon, so you can give it a try and return it if you don’t care for it.

  • Chris Guss

    Member
    October 13, 2021 at 11:08 am in reply to: Mannitol Updates? Does it even taste sweet?

    Robert, Any Keto chocolate recipe will allow for the inclusion of mannitol as the sole or partial sweetner. Keto Nutella is a pretty fun and simple starting recipe.