Chris Guss
Forum Replies Created
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Yes, there is a Parkinson’s body odor that has just been confirmed as diagnostic. Check out the recent episode entitled, “A 3-minute test for a Parkinson’s diagnosis” on the “When Life Gives You Parkinson’s” podcast: https://www.parkinson.ca/resources/when-life-gives-you-parkinsons-presented-by-parkinson-canada/
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I have also been on the Zhittya zoom calls and also have mixed emotions. CEO Dan’s diatribes about the FDA, how much money they have already invested, and even announcing that he dosed himself with FGF-1 appear to me as unprofessional and discrediting to the overall cause.
On the other hand, I find the fMRI images of vascular growth intriguing and the hypothesis that alpha synuclean accumulation is due to vascular damage worthy of investigation.
I would like to see pre and post imaging of vascular changes in future volunteer subjects as well as continued follow-up with the 2 subjects presented on the last call.
I wish everyone involved only the best and am grateful for their efforts. I look forward to future updates.
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Do you mean full spectrum light for circadian issues or Red light for mitochondria support? (see https://www.wellred.com.au) I use a therapad as a head wrap for a daily red light treatment.
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Chris Guss
MemberOctober 8, 2021 at 10:25 am in reply to: Mannitol Updates? Does it even taste sweet?In response to the previous questions about mannitol dosage, the CliniCrowd website offered the following suggested dosages:
~20g per day. Above 20g per day, it may have a laxative effect
Their film, My Disease, Our Revolution (2020), was available online here:
https://tubitv.com/movies/591127/my-disease-our-revolution
Ally also interviewed them last year. Here’s the youtube link: Interview with Dr. Daniel Segal and Amir Sadeh About Mannitol, a Potential Parkinson’s Treatment – YouTube
One of my favorite moments is when, Dani says something to the effect that We know that Parkinson’s starts in the body maybe 20 years before detection, so don’t call me up after a couple of days to tell me that Mannitol doesn’t work! Give it at least 6 months. CliniCrowd was originally set up as a website to track your progress, but I don’t believe that the site is currently maintained.
I currently take 10 gm each morning in my tea and have for about 90 days so far.
Good luck to you all.
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Daphne Bryant runs the B1 HDT facebbok group that you mention. Her book, Parkinson’s and the B1 Therapy, is available on Amazon and the profits are dedicated to funding a proper double blind placebo trial. Aside from the facebook group, she regularly responds to posts on healthunlocked.com.
I have been taking B1 100mg as a sublingual for over a year and am among the thousands of PWP that feel it has significantly helped.
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I use it for 20 minutes daily on the dual spectrum (660 & 850nm) flashing mode for maximum power. After 15 months, its hard to say if its working, since I am attacking the disease with other therapies as well, but its easy enough to do. I intend on continuing to use it. The price continues to drop on Amazon, so you can give it a try and return it if you don’t care for it.
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Chris Guss
MemberOctober 13, 2021 at 11:08 am in reply to: Mannitol Updates? Does it even taste sweet?Robert, Any Keto chocolate recipe will allow for the inclusion of mannitol as the sole or partial sweetner. Keto Nutella is a pretty fun and simple starting recipe.