[Christine P.]

I just started Inbrija a few weeks ago, I feel half and half because sometimes it works sometimes it doesn’t. But the price is high, $401 for 6 days supply. Edward mentioned manufacturer only charge $20, do you mind to elaborate more on how much your wife paid, does it go through your medical insurance? I would like to know because it is till a good tool to overcome the off time, so I will continue to use it.

Thanks for your help.

Christine Pierson

[Christine P.]

Hi, I was diagnosed with PD 2-1/2 years ago, but I have dry eyes 30 years ago,  especially since I have had lasik done. The dry eyes situation has changed, and it got worse. I did some search on  the internet and learned it can not be cured.  I used the warm compress and over the counter eye drops.  I am doing my best trying to maintain it. I also learned that the “tear care” method can help,  try it, and not work. I never realized that dry eye Belphoritius is a sign of PD!

 

 

[Christine P.]

1) having trouble move my legs when I’m not on the medicine
2) notice my left arm stop swing when I walk, have to make it to swing
3) numbness of right side of my body, especially lower part of my leg
4) gait problems, hunchback, my upper body would lean forward without knowing until someone point it out.
5) taste bud and smell are not as sharp as before (1 year ago)

[Christine P.]

Hi Ally, I would like to know more about Clinical Trial and Stem Cell Treatment information about Parkinson’s. I was diagnosed last year with movement disorder gait issues, I heard about Clinical trial, but not sure whether should or should not participate and how to, if I choose to participate; also the pros and cons of clinical trials. Thank you.

[Christine P.]

Hi, I also stopped the Inbrija, I didn’t get the effeteness so I stopped using it. The 2nd reason is the price, they are ridicules expensive. Anyway, I give up on Inbrija.

[Christine P.]

Hi Zee,

You’re very lucky, but not me. I was diagnosed with Parkinson in the middle of 2021, so it’s about 2-1/2 years and my C/L increased like crazy. From the day of diagnosis, my doctor gave me 4 tablet of c/ 25-100 sinemet every 4 hours, about half years later I’ve increased to 2 tablets every 4 hours and now I still take 2 tablets, but every 3 hours 5 times a day plus 3 tablets of Amantadine plus 1 tablet of C/L ER 50-200 for bed time, because I wake up a few times with off-time feeling, that makes me extremely uncomfortable and unable to sleep. That c/l ER did help me sleep much better at night. Sometimes the medications, for some reason, just not working, then I’ll take mucuna pruriens and it helps me ease the off time trouble. I wish I can reduce the amount of medications, but it seems to impossible. I never heard of pramipexole or sugar Mannitol, I’ll check out. Thanks for sharing your information.

[Christine P.]

Hello jetockeu,

I had PD for almost 3 years and just recently asked my doctor to prescribe Inbrija to me as a rescue medicine for my off time. But the price of it was so high, I feel I can’t afford it. My Insurance categorize Inbrija as Tier 5 drug so I would have to pay $401 for 6 days supply. Is there any other way that I can lower my co-pay for this medication?

Thanks for your help.

Christine

[Christine P.]

Hi, Jon, I agreed with you that Neuralli doesn’t work for me,  I just wasted my money.