ajs1
Forum Replies Created
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I take two pills five times a day 25 – 100 pills. I take six during the day and 4 a night to sleep. The 25 – 100 pills make it able for me to sleep at night. And I still have off times with all these pills. I hate pills hate pills. Up to the age of 58 I was never taking pills. Now I take 10 a day and it’ll be more later on I’ve only been on the pills for 6 years I pray for each and every one of these people on has parkins as they can get better and get away from this bills.
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I have to take 25-100 pills at night just asleep. I cannot sleep without them.
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Supernus SPN-830 NDA
AbbVie ABBV-951
Both of these treatments consists of a pump, like diabetics use, to inject medicine directly into the skin. These both are approved in Canada and Europe but the US FDA refuses to approve them.
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This is fours years old so it maybe outdated. The Doctor is no longer at San Diego.
health.ucsd.edu
One-Time Treatment Generates New Neurons, Eliminates Parkinson’s Disease in Mice
UC San Diego researchers discover that inhibiting or deleting just a single gene, the gene that encodes PTB, transforms several types of mouse cells directly into neurons.
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I just came across this a couple of days ago so it maybe old news. The Doctor I believe is no longer at San Diego.
health.ucsd.edu
One-Time Treatment Generates New Neurons, Eliminates Parkinson’s Disease in Mice
UC San Diego researchers discover that inhibiting or deleting just a single gene, the gene that encodes PTB, transforms several types of mouse cells directly into neurons.
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Yes I would move into a house for the first floor or even to a nursery home. It’s better to live in conditions that you can handle instead of trying to extreme your efforts to live. Some people I know have lived in a house a long time and don’t want to give it up due to the medical issues but you got to do what you got to do to stay alive and to live a good life. If that means moving to the different house or even to a nursery home and that’s what needs to be done. I have a house on one acre lots of grass I mow it every week on a rider and it’s getting tougher and tougher and I know I’m going to have to give it up someday but that’s what I got to do that’s what I got to do. Or depend on insurance and your state of financial you can hire people to help you out and maybe stay in your same home.
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Me and my wife both have Parkinson’s. She’s just very well on 25-100 pills once or twice a day. I’m taking 1,000 mg a day of 25-100 I needed just to sleep. But I go to the gym and stay as active as I can. When I take the pills I’m normal, when they were out in the off time comes in I’m like a cripple. One day I walked into Walmart and normal as as can be as I am 64. Meds wore off in 5 minutes I was like a cripple trying to walk out. So I know how that feels, try to get the doctor to adjust their meds or help them out somehow and pray for these people!
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Thank you for your reply, yes it’s very tough on both husband and wife have Parkinson’s. Especially when there’s no caregivers around to help.
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Can you tell us if you discovered what was the cause of the site infections, sensitive skin or the medication?
It sounds like your skin just would not absorb the medication.
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Yes I have been keeping up with their research and clinical trials.
So far they have been 50% effective against Parkinson’s.
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My Wife went thru Focused Ultrasound twice at Stanford University with negative results. But that does not mean it will not work for u.
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I have been receiving updates on this treatment and thru the clinical trial its about 50% effective to Parkinson’s. They have a website with clinical trials recorded.
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Okay doctor, and your reply you indicated is not as uncommon as I may think. Interesting in your practice how many couples both have Parkinson’s.? Or parkinsonian because somebody has Parkinson’s will show also parkinsonian. I’ve been to Stanford neurology department nine times with my wife. She did the ultra focus ultrasound twice with a negative results. She did the DAT test inconclusive results at Stanford. Sameon doctors office in Santa Barbara twice, then do UCLA three times, they’re the ones that got her on the right medication because the carpidopa lipa dopa makes it very nauseated. Been to UCSF once for a consultation on DBS however he referred her to Stanford and eventually we ended up at UCLA which helped my wife get on the medicine. Because of my experience with her I know I have Parkinson’s not parkinsonian. Forgive me with the spelling but that’s all Google talk text is. Oh by the way all three hospitals have never heard couples having both Parkinson’s. I was just curious if it did exist, I’m sure it does but I won’t know until somebody tells me what the percentage is. Thank you for your reply though if you have some specific medical knowledge that you can share with us let us know like how about a cure! But very little action or I should say a lot of action with campaigning with month for money but no cures. Very irritating. Is one company who bleeds through the use of fg1 medication derived from the placenta, they can grow veins in the brain and other audio areas such as the heart and cure or leave it some medical conditions. However in the United States the FDA will not even give him plans to test in the United States, so he’s testing another countries. Canada and Europe have cleared a medical device similar to diabetics pump, that will pump medication into the patient like diabetic pump to alleviate the symptoms. . Again in the United States the FDA will not clear the system for the US. Thank you for listening to me and I hope somebody out there finds a cure at least the United States will clear a system to help with the symptoms of Parkinson’s disease.