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    • #12204
      Jean Mellano
      Participant

      Have you had DBS performed?  If so, please share your experiences, if not, are you considering it?  Why?

    • #13735
      chuck
      Participant

      I’m considering it. Meds have no effect on my tremor. I really don’t want to have to get this though. I’ll put it off as long as possible.   To tell the truth I’m scared stiff and afraid of the possibilities.

    • #13738
      Jean Mellano
      Participant

      hi chuck,  i hear you about your fear.  the thought of any type of operation is frightening.  however, someone in my support group had DBS and she has said her life has changed dramatically for the better.  here is a link to her video: https://www.facebook.com/melissa.hahn.5/videos/1711763382220724/

    • #13850
      Lou Hevly
      Participant

      Spooky. A little remote control box that uuppers and lowers your symptoms. But this is easy to say when you’re in the initial stages and you don’t have serious movement issues. I may well change my mind as time goes on.

      • #13853
        Jean Mellano
        Participant

        Lou, I agree, however as you say, as time passes, I may change my mind depending on  how my PD progresses.

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