This topic contains 4 replies, has 3 voices, and was last updated by  Jean Mellano 8 months, 2 weeks ago.

  • Author
    Posts
  • #12204
     Jean Mellano 
    Keymaster

    Have you had DBS performed?  If so, please share your experiences, if not, are you considering it?  Why?

  • #13735
     chuck 
    Participant

    I’m considering it. Meds have no effect on my tremor. I really don’t want to have to get this though. I’ll put it off as long as possible.   To tell the truth I’m scared stiff and afraid of the possibilities.

  • #13738
     Jean Mellano 
    Keymaster

    hi chuck,  i hear you about your fear.  the thought of any type of operation is frightening.  however, someone in my support group had DBS and she has said her life has changed dramatically for the better.  here is a link to her video: https://www.facebook.com/melissa.hahn.5/videos/1711763382220724/

  • #13850
     Lou Hevly 
    Participant

    Spooky. A little remote control box that uuppers and lowers your symptoms. But this is easy to say when you’re in the initial stages and you don’t have serious movement issues. I may well change my mind as time goes on.

    • #13853
       Jean Mellano 
      Keymaster

      Lou, I agree, however as you say, as time passes, I may change my mind depending on  how my PD progresses.

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