Tremor Therapy / Medications - Parkinson's News Today Forums

Parkinson’s Treatment

Tremor Therapy / Medications

Posted by KL0528 on May 29, 2025 at 2:30 pm

Hi, I recently was diagnosed with PD three months ago. It took two years and several Dr’s to get the final diagnosis. I’m in late 50’s and in very good shape for my age. I think that was part of the delayed diagnosis. Right now i’m not taking any meds but have tried Crexont, immediate release Levadopa, and propranolol. None of them have worked on the tremor and currently that is the most significant symptom to date. My symptoms are too “mild” for Focused Ultrasound or DBS. The Clinic / Dr that I’m seeing now doesn’t have any other suggestions.

At this point, I’m trying to find out if their are alternate therapies or meds that have been used to help with this. Any help / suggestions would be greatly appreciated.

gregmartin replied 6 days, 5 hours ago 12 Members · 14 Replies
14 Replies

Kenneth

Member
June 5, 2025 at 12:26 am

Man, sounds super frustrating. My uncle went through a similar thing—fit as hell, but the tremor gave it away eventually. Meds didn’t help him much either till he started exploring alternatives. He ended up getting something through a Canada Pharmacy Partner after chatting with another patient online. Might be worth a shot to look into lesser-known options.
- KL0528
  
  Member
  June 5, 2025 at 4:12 pm
  
  Thanks for responding. I see the link but i don’t see the alternative treatment in the link. If you could respond with the treatment, it would be greatly appreciated.
  
  Thx,
Shawn

Member
June 5, 2025 at 2:31 pm

I was able to substantially reduce my use of carbidopa/levodopa by adding 5-10mg Sativa gummies every 4 hrs. Worst case is it doesn’t work and you get a buzz. But I found it very successful for me. My neurologist is tracking my progress because he hasn’t seen this level of success before.
Tom

Member
June 5, 2025 at 4:56 pm

Carpidopa/Levadopa never worked for me. Amantadine worked minimally but the side effects were too extensive to make me want to continue. Now concentrating on physical therapy for.my FOG.
Leroy Cornell

Member
June 5, 2025 at 7:52 pm

I have a similar path, a marathoner until 63 when my knees gave out and tremor with PD diagnosis at 64. I’m 66 now and my movement disorder neurologist is suggesting it may not be PD, but a dystonic tremor (whatever that is). I still exercise and suspect this is delaying symptom progression or maybe its not PD after all? Propranolol makes the tremor milder, but my cardiologist doesn’t like what it does to my resting heart rate.
Good luck sorting this out and wish you success.
Scott_W

Member
June 6, 2025 at 9:45 am

I was officially diagnosed in May of 2022 with PD. Tried rasagaline, pramipexole. Neither worked. Started C/L 25/100 2 tabs 3x daily (every 5 hours or so). Saw a great benefit for a while. About 6 months ago, started having off periods and added a 4th dose to my daily routine. About 6 weeks ago, one of my doctors said to try metformin, a very mild type 2 diabetes drug that in some informal studies have proven to have some benefits for PD symptoms. 3 days after I started on it, I noticed a substantial drop in my stiffness and other PD symptoms. I’m now taking 2-500mg ER tabs. 1 with breakfast and 1 with dinner. 6 weeks later, I’m doing great. Not sure if this will work for others but it might be worth trying. Good luck!
- KL0528
  
  Member
  June 18, 2025 at 6:28 pm
  
  Hi Scott,
  
  You gave me more information than my Neurologist. I genuinely appreciate your input and experiences. My Neurologist is very well educated (Stanford, etc), however, she is not an out of the box thinker – just follows the recipe. She was just giving me what everybody else is doing without stepping back and looking at a different path to solve the problem.
  - rrr
    
    Member
    June 19, 2025 at 3:31 pm
    
    What is 500 ER ?
- Karenrm
  
  Member
  June 19, 2025 at 2:28 pm
  
  Did you continue with c/l with metformin?
francisco manuel goncalves

Member
June 19, 2025 at 11:43 am

Boa tarde,.

Diagnostico Janeiro 2014

Tenho quase,75 anos.

No inicio, primeiros 5/6 anos, o problema dos tremores, resolvi, quase e só com Levodopa.

Cada dia mais dificil é certo.Nunca tomei outro medicamento, que não Levodopa.

Neste momento e desde Novembro de 2024, não tenho qualquer tremor.

Reduzi a Levodopa para menos de 1/4.

Fui submetido a cirurgia DBS. Resultou imediato . Deve ser a única cirurgia de efeitos imediatos.

Não necessito de qualquer apoio, de familiar ou cuidador. Vou ão ginásio 3 dias por semana,(ajuda bastante).Os restantes dias, por norma pratico caminhada.

Tenho cuidado com quedas, alimentação, cnvivio, tudo aquilo que me facilite o dia a dia.

Sou português, vivo numa cidade muito prquena, nde toda as pessoas se conhecem.

Eventualmente podem residir aqui 10/11, pessoas doentes de Parkinsson.

Estou bem, comigo mesmo, muito importante também.

Não sou médico, não quero opinar sobre tratamentos. Apenas dou a con.ecer a minha situação. A cirurgia DBS,comigo até ao momento resultou. 

Saúde, para todos.
rrr

Member
June 19, 2025 at 3:43 pm

We have discussed many options for treatment. Options brought to our attention by the 12,000 members are patient support group. There is no fee, no subscriptions, you just join and study our many documents (our library). Join us in the Facebook group, Parkinson’s thiamine HDL.
outdoorgal64

Member
June 19, 2025 at 3:54 pm

My husband takes C/L (one is a 10mg/100mg pill & one a 25mg/100mg extended release pill); taken every 4 hrs & this helps with almost no tremor. His doc is not an out of box thinker either. I definitely would recommend the following:

1. Keep asking questions, & push for answers bc if you don’t, unfortunately, no one will on your behalf; unless you seek out another Neuro. Exercise is key.

2. I find these forums helpful bc of the experiences of all the members replies.

3. Lastly, the Michael J. Fox Fdn & Parkinsons.org are great resources too.

Keep moving forward my friend!
Shaun

Member
June 19, 2025 at 5:22 pm

Amino Acid Therapy. I have written about it several times on this site. We use a naturopathic Dr out of Madison Wisconsin and do all our ‘work’ with him over the phone. Miraculous results. Long story short…my husband has been on this therapy over two years now and all of his symptoms are gone, except a slight wiggle here and there during ‘excitable’ moments or if it’s very cold. I got my husband back! It takes lifestyle changes and dedication, but it can be done!! Look me up to get the full story on this site! Good luck in your journey!!
gregmartin

Member
June 19, 2025 at 6:32 pm

If you’re not responding to Carbidopa/levadopa then chances are you don’t have Parkinson’s

If you want to stop your tremer , quit eating sugar and carbs and get on a carnivore diet. Give it at least a month but just a week or two will probably show you results. What do you have to lose?