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OFF times vs. ON times
How do I know when I have an “OFF” time? My left arm still does not swing ever. My toes curl up constantly throughout the day (dystonia) even when I am relaxing. Are these just symptoms that dont go away? What should the ‘ON’ times look like? I was diagnosed at 61 and now 65.
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1 Reply
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I don’t find the differences between “on” and “off” to be very dramatic, but I’d summarize my experience as follows:
Within 30 minutes of taking my C/L dose (which is every 4 hours between waking and sleeping), my back and thigh muscles start to loosen up and my hand tremor is reduced (but not always eliminated). As I near my next dose time, the symptoms ramp up a little.
Also, I find it very helpful when my dose time lines up with the start of a vigorous exercise session like spinning or outdoor biking. I have some of my strongest performances under those conditions.
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