• OFF times vs. ON times

    Posted by robert-medof on February 29, 2024 at 2:49 pm

    How do I know when I have an “OFF” time? My left arm still does not swing ever. My toes curl up constantly throughout the day (dystonia) even when I am relaxing. Are these just symptoms that dont go away? What should the ‘ON’ times look like? I was diagnosed at 61 and now 65.

    jeffery-hill replied 1 month, 1 week ago 2 Members · 1 Reply
  • 1 Reply
  • jeffery-hill

    March 3, 2024 at 11:16 am

    I don’t find the differences between “on” and “off” to be very dramatic, but I’d summarize my experience as follows:

    Within 30 minutes of taking my C/L dose (which is every 4 hours between waking and sleeping), my back and thigh muscles start to loosen up and my hand tremor is reduced (but not always eliminated). As I near my next dose time, the symptoms ramp up a little.

    Also, I find it very helpful when my dose time lines up with the start of a vigorous exercise session like spinning or outdoor biking. I have some of my strongest performances under those conditions.

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