Rest in peace Parkinson’s advocate Ozzy Osbourne

[pauleven]

I was aware that Ozzy Osbourne had Parkinson’s, but I didn’t realize he had the Parkin form linked to the PRKN gene. It’s always powerful when public figures are open about their diagnosis, it brings more attention to the condition and helps reduce stigma. His openness about the challenges he faced probably gave a lot of people in the PD community a sense of solidarity.

[Ally]

I agree. There is something about having a famous person speak openly about their experience that can help others who are not well-known feel less alone. 🙂

[Jane Pinho]

I’m speaking in a local level and promoting my journey with Parkinsons. With so many resources today just looking for assistance to help educate people that know nothing about PD and why are we afraid to be public about our disease. Common misinformation about people with PD. Help is greatly appreciated so I can help everyone challenged with a diagnosis, talking openly about their disease and what life is like for people with PD and their caregivers. Famous people help spread awareness yr not the understanding of the disease

[Ally]

I agree, Jane, and your voice and experience as a person with Parkinson’s also has tremendous credibility. I’m sure the speaking you’re doing at a local level has helped many people. How did you get involved in that work? Do you enjoy it? Do you have any advice for others who want to do the same?

[Wobblygirl]

My hairdresser asked me about Parkinson’s symptoms and I tried to describe some of them to her. Her response? You should ask AI. My daughter got the best recipe for carrot cake from AI. Must remember to tell my neurologist!