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AK Jones

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@wildkenny50

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    AK Jones replied to the topic Do you use technology to fight Parkinson's? in the forum Parkinson's Disease alternative treatments 1 year, 7 months ago

    LOL, And how is that working for you?

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    AK Jones posted a new activity comment 1 year, 7 months ago

    How did you get your photo your profile, ever time i have tried, the photo only changes the background. I will appreciative any help you can provide

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      John replied 1 year, 7 months ago

      Under the Profile Tab there are two choices Change Profile Photo or Background Image.

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    AK Jones replied to the topic Have you been detoxed of heavy metals? in the forum Parkinson's Disease alternative treatments 1 year, 7 months ago

    no i have not tried to detox  for heavy metals; this is the first  time i heard about it.

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    AK Jones replied to the topic Parkinson's and Rheumatoid Arthritis in the forum Living ​With​ ​Parkinson's Disease 1 year, 7 months ago

    I have both RA and Parkinson, I can not function without starting the day leg exercise  and hand exercises.   I really don’t know what is recommended, I rely on the exercises recommended by Physical therapist and OP.

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    AK Jones replied to the topic How long does it take to find the right medication balance? in the forum Parkinson's Disease Medications 1 year, 7 months ago

    Still working on a good fix for me, I started out taking 2 pills of Carbidopa/Levodopa.3x a day, moved to 4x a day FYI, (new  neurologist said more than 800mg a day is toxic), He recently added 200MG, of ENTACAPONE, EVERY 6HRS.  And God blessed me with this mixture allowing me to be more mobile; my PTSD meds had to be reduced because of i…[Read more]

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    AK Jones replied to the topic How do you handle stress? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 7 months ago

    It is not for every one, I cuss like a former Marine ( which I am), however I do not swear or use GD. I can relax by taking a long hot shower, set in whirlpool, or listen to good music.

     

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    AK Jones replied to the topic Do you use technology to fight Parkinson's? in the forum Parkinson's Disease alternative treatments 1 year, 7 months ago

    use mechanical “picker uppers”* by RMS,have one to two in every room of house. I use weighted eating tools. also i have purchased a U-Step walker, a motorized  wheel chair with vehicle ramp; magnifying glass with light. looking for a remote television sound transmitter (not ear plugs or head phoneless ), For relaxation I downloaded free Orange…[Read more]

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    AK Jones replied to the topic Have you tried any devices that help with Parkinson's symptoms? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 10 months ago

    I purchased a U-Step walker, it has prevented falls(especially falls forward), and the red laser light has helped learning to step properly. I am a big old fat man, I often use the walker to pull myself up from chair/bed.

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    AK Jones replied to the topic Mannitol, a sugar, has given me back my life! in the forum Parkinson's Disease Medications 1 year, 11 months ago

    I appreciate you sharing your knowledge, I will try many of your routine supplements, I would love to to be able to walk  to enjoy growing a vegetable garden.  My Parkinson comes from being sprayed with agent orange (USMC combat in Viet Nam), I have been diagnosed as Stage 3 Parkinson.  It is awesome that you are no longer in hospice. God Bless.

  • Profile picture of AK Jones

    AK Jones replied to the topic Mannitol, a sugar, has given me back my life! in the forum Parkinson's Disease Medications 1 year, 11 months ago

    My cons on Mannitol is the taste is awful, I took it for only two weeks(tablespoon)  in my morning coffee and heavy whipping cream. It took three packets of artificial sweeter to be able to tolerate the taste. It overshoots my diet of less than 30 carbs a day.

    I will give it another try after I loose 50 lbs.

  • Profile picture of AK Jones

    AK Jones replied to the topic Are you worried about falling? in the forum Parkinson's Disease Symptoms 1 year, 11 months ago

    I fall at least 4 times a week, God has blessed me with the ability to be able to move in a manner that I reduced the damage to body by recalling tumbling skills earlier in life. I have had some really nasty falls when furniture and such are in the way of my falls. Ripping toes open, cutting leg/arm/face, fracturing ribs/ wrists/ shoulder . My…[Read more]

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    AK Jones became a registered member 1 year, 11 months ago

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