Forum Replies Created

  • Violet Ori

    Member
    February 22, 2024 at 8:54 pm in reply to: Help-What To Do?

    Ginni…of course your situation is unique to you but let me share my experience with my husband who rapidly declined. I did not understand that he really couldn’t do anything to help himself. We visited the neurologist and did visits with a psychiatrist but, as his disease progressed, he lost his ability to do the activities of daily life. Once I realized that it was the disease and not his fault that he was losing his abilities, I felt guilty for thinking he had some control.

    You should certainly consult the medical community to see if there is anything they can do to help, but it might just be the Parkinson’s. I pray that you can get some help in caring for him because it is a full-time job…and not an easy one.

  • Violet Ori

    Member
    March 2, 2023 at 8:29 am in reply to: Medications

    Rob Johnston…thanks so much for the link to the Mayo Clinic article.  My husband has Parkinson’s and was experiencing “off” times.  We have shortened the interval between doses and it has made a huge difference.

     

    Many thanks!

  • Violet Ori

    Member
    September 21, 2022 at 8:56 am in reply to: Being treated like you’re stupid.

    John…your topic hit a nerve with me. My husband has PD and I am not always understanding and patient. I believe my issue is that I am in denial and angry about what has been taken away from us by the disease. So, go easy on your friends and family. They are not evil but rather having a hard time accepting your limitations. Good for you for expressing your feelings….I know that is not easy.