Forum Replies Created

  • Russ W.

    Member
    February 6, 2024 at 8:19 pm in reply to: Do you have low back pain not responding to PD medications?

    Yes, I have severe back pain. I’ve been through 7 rounds of physical therapy with no relief. I assumed that my back pain was from a work injury. A couple of weeks ago I saw my pd Doctor. I asked her about back pain associated with parkinson’s. Her response was that it was not generally an issue. I have to get out of bed anywhere from 2:30 in the morning till who knows when because of back pain. I slept on a memory phone mattress for almost a year. I finally got rid of it and my pain seems to be doing a little better. Unfortunately, I am a side sleeper. That might also be adding to the problem. I can only stand for about 5 minutes. I can only walk for about a 1/2 a block before my back tightens up. However, I can go 20 to 30 minutes on a stationary bike or a treadmill by holding on to the handle and getting the weight off my back. I use a Walker around the house, not because of my pd instability, but because of my back. It generally always starts in my lower back but slowly progresses up my spine across my shoulders and up into my neck. I can only handle about 10 minutes in a kitchen chair. To ride in a car I have to recline the seat quite far back. I have multiple painkillers that I use for it. Everything from Ibuprofin and Tylenol to opioids and everything in between, depending on the severity of the pain. I have found that 1 to 1 cannabis helps with my back pain as well as my tremors. I only take a quarter or a 1/2 at the most of a chewy which seems to be plenty. The only problem seems to be that it can take up to 2 hours before it starts working. No, you are not alone. I hope this helps. Good luck.

    BTW. I take 600 mg of gabapentin At Night to help me go to sleep and stay asleep.

  • Russ W.

    Member
    February 1, 2024 at 6:52 pm in reply to: Have you tried CBD oil?

    CBD by itself , not much effect. WITH THC, yes. I was against it at first. In fact I voted against it when the option came to my state. It took my Doctor over a year to talk me into trying it. Thank heaven came here anyway. It helps me with shaking, muscle cramps and overall pain. It also helps me sleep. I use a 2:1 CBD:THC. I try not to take it every day. I end up taking it about 2 to 3 times per week. I would advise experimenting with ratios. I have tried everything from 4:1 to 1:1. Good luck.