Robert

I suffered with constipation for many years before I was diagnosed with PD. Now I take two pouches of Macrogol (as Laxido) every morning and one pouch every other night together with two 7.5MG tablets of CenLax (calcium sennosides) every night. This has helped a little but what has really helped has been a lunch of mixed fruit every day and…[Read more]

I was having awful nightmares. Very physical, lots of “punching out” and violent movement. Now I take 250mcg every night just before sleep and the nightmares and violent movements have stopped. However, I have noticed that if I introduce any new medication or new supplements that work on the brain I will get one or two nights of mild…[Read more]

I tried Mannitol for several months, originally the Israeli one then an organic one.  It had no effect at all so I guess it’s different for different people like so much with PD!  Very pleased for you though Thomas,  I hope it continues to work for you.

Hi Daniel
Yes, I’ve tried beta blockers. Unfortunately I have a very slow heart rate so they don’t suit me. Dropped me down from low to mid 50 bpm to low 40’s. definitely don’t recommend that 🤣. My tremor also gets worse with anxiety, hence the diazepam as I have had no luck with any other anti anxiety meds.

Hi Todd

Interestingly, no one has ever suggested that i might have Essential Tremor.  I have seen four different movement/Parkinson’s consultants and they all concur that i have PD.  From looking on the internet i don’t think i fit the Essential Tremor profile.  Many thanks for your thoughts though.

Hi James

Xanax isn’t generally available in the UK although I think it can be purchased on a Private Prescription if you can get one.  I find small doses of Diazepam (same general group of meds as Xanax) can be helpful on occasion but, I think, that is more dealing with Parkinson’s anxiety than the actual tremor.  I have noticed that the more a…[Read more]

Hi Russ and Murray

I have started on the Butyrate but the recommended dosage is 2 capsules three times a day which equates to 6 capsules a day not the 12 you are taking.  Are the directions different on my Butyrate to yours or are you doubling up?  I am very keen to give Butyrate a realistic go.

Hi Russ

I also take Butyric Acid but much less than you do. I also take Shark Liver Oil.  I would be very interested in knowing what brand of Butyric Acid you take and also what type you take Sodium Butyrate or Calcium Butyrate? Please could you also tell me what Niacin you take?