Paul D Lefebvre

Toni and Allie, Thank you so much for your insightful articulation of this problem. I commend you both for the way you have dealt with it; and you will probably have to from time to time. ~ I too experience this problem, mostly from our eldest son. I know he means well, and is trying to be sure I’m included and not neglected. But I’m conscious of…[Read more]

Tina, Thank You for sharing your experience here on this forum, as it’s one more story that puts PD in perspective and helps some of us see the condition in a new light. Your description of internal tremors was good for me to hear; I most often include internal tremors when talking about PD, but I’m not aware of hearing others talk about such…[Read more]

Caroline, Russell and others, Thanks for continuing this conversation focused on trying to get the meds and dosage right. It does indeed seem like an endless guessing game, but a game the symptoms compel us to undertake. My immediate hope is that discussions such as this will help us better resolve our individual conditions. Maybe for the longer…[Read more]

Garrett, it was good to  see your question here as I have been considering something similar. I was diagnosed 7.5 years ago in Aug 2012; it has taken met all this time to get to this question (and I’m really not there yet). I take two tabs (100/25 Sinemet) at 6am, 2 tabs at 9am, 1&1/2 at 12:30pm, 1&1/2 at 4:30 pm; none after that til morning at…[Read more]

Symptoms of bradykinesia (not known to me as that at the time) got my attention on the racquetball court (a playing opponent thought it peculiar that I didn’t respond to the ball coming at me) and prompted me to get an assessment with the neurology dept of my health care clinic. It was at that assessment that my tremor was spotted and identified…[Read more]

Hi Jean. No, I don’t believe my symptoms worsen with the cold weather (its very cold here today and tomorrow).  The progression of my symptoms is something that frustrates me; some days I think there is progression in one symptom or another, but then I really don’t know. It’s only by focusing on my condition over time that I can see those symptoms worsen.

Hi Everyone, My life long (76 years) home is Minneapolis, Minnesota. I spent about 8 years away while in the Navy (met and married my wife in Derry, Ireland).

Yes, yet another voice to the foot problem. I was diagnosed with PD in August 2012. I can’t recall when my foot neuropathy became a problem, but it seems to me it has been since the diagnosis and it is my sense that it is becoming progressively more intense. I do not claim this problem as painful; more as a nuisance. I have the constant sensation…[Read more]

In Minneapolis the winter has begun with just a few flurries of snow, but it is cold! I’m old enough to not have to like winter weather anymore, and I don’t. But I know Minnesota is my home and here I’ll stay. Our other three seasons are nice enough to compensate for the winter. What has me worried is that the past two winters I’ve been more and…[Read more]

Ally, Thanks for asking. My symptoms are not getting better, and, indeed, seem to be ganging up on me. I just told my wife this morning, ‘I’m fed-up with this condition’; I’m ready for it to be done. Knowing what I think I do about this disease, I know that it “being done” is not a prospect. I have not changed my perspective on the issue of focus…[Read more]

Greetings Greg. Bravo! to you. It sounds as though you have just continued to be active doing the things you like. That annoyance with the tremor’s affect on the throttle control reminds me that I experience a similar situation: my right foot is subject to dyskinesia and often enough when I’m driving the car will lurch from my footwork on the gas…[Read more]

That “I am no longer the athlete I used to be” is a very difficult admission, even -or, especially- to our self. It dissolves some of the glue of pride that held us together over years of living and aging. Even if a person was never an athlete, to say “I cannot do the things I used to do; things that made me Me, showed my accomplishment”, is a…[Read more]

I have read similar about intensity and frequency, and I get the same results you do. My working theory now is that I will work hard enough to get a good sweat to ensure I’ve pumped some new oxygen through my body, and then be done.

You’re right, thee are a lot of potential meds coming to market it seems, or at least coming in to research. They all have the “may …” caveat.

I have pretty much decided that I will stick with tried-and-true Sinemet as long as it works. I would weigh carefully recommendations from the neurologist I see. As for a pursuit of other medications, I…[Read more]

The research trials report found in Parkinson’s News Today makes this vaccine an interesting prospect for at least stopping the PD progression. Like the prospects for gut microbiome treatment, stopping PD progression would be very welcome. ~~ As for trying it, I would seriously consider it if it came as trial to my local PD clinic.

This is an interesting -on gut metabolites- theory and seems a positive possibility toward at least halting PD progression. Even if it would not produce a cure, stopping the progression would be very welcome.

Yes. I often wonder about the value of exercise, for instance, especially when it leaves me depleted. But then I wonder -both out loud, and to myself- ‘what would I be like without it’? ~~ It’s good to hear that you are not now bothered by internal tremors. That’s a relief whatever the cause.

In addition to my complaints of bothersome PD symptoms as I wrote above, there is one insidious effect that really bugs me: my focus on myself. It’s a good thing when I have others around to distract my focus.

In retrospect my symptoms began in the summer of 2006. Eventually, the impact on my movement ability, as well as the increase in tremors and the change in my handwriting, moved my to get an evaluation and I was diagnosed in August 2012. I began immediately to read what I could find on the disease, and that included several writings that talked…[Read more]