Forum Replies Created

  • Kenneth Campbell

    Member
    January 11, 2022 at 7:45 pm in reply to: How do you manage freezing episodes?

    My freezes seem to happen more often when under stress and or pushing a grocery cart and suddenly have to stop for someone. My tricks are counting backwards from ten and say my ABC’s. Much to often I’ve already fallen or manage to sit. It can be frustrating and embarrassing, but I keep saying both until my big toe can wiggle. I often miss a number or two or a few letters and once I can get though the ABC’s, I’m Up and off again! I was diagnosed in 2017 and in the last 3 years it has become much aggressively worse. I know my limitations and don’t push it. The worst is to often I feel a burden to my family when I force myself to ask or call out for help. I recently came to stay with my little big sister and brother in-law. She is a dedicated care giver and 1 out of 5 more siblings that knows much about Parkinson’s. I’m so grateful for them! I ask my other siblings to try to learn something about Parkinson’s, but I recently asked my 34 year old son, “Son, what have you learned about Parkinson’s the last few years? Nothing! Was his answer.” What a blow to my heart!! His wife is an RN I would have believed that they learned much about Parkinson’s together. My 13 year old granddaughter knows more than most of my family. That’s a small part of my life with Parkinson’s.

    I will see my nerologist in a couple of weeks and I believe we are going to try a 4 or 5 medicine. So far all medicine only helps for a year or so. My faith is strong and that is what gets me through!

  • Kenneth Campbell

    Member
    November 30, 2023 at 2:45 pm in reply to: Do you still have your driver’s license?

    3 drive offs into fields, 2 totaled vehicles and a 3rd one where I was able to make a door in the wall of a wherehouse for the owners. Well, I parked my car in their building last Christmas Eve. As I sat there thanking God that no one was hurt, I calm voice said “it is time you leave the driving to others now.” I have not gotten behind the steering wheel since. I am so thankful that no one was not hurt because of me.