Jeffery Hill
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Jeffery Hill
MemberOctober 15, 2019 at 12:40 pm in reply to: When did you disclose your PD at work?I disclosed nearly 2 years ago and was treated no differently before or after. 8 months later I announced my plan to retire in 6 months. The company worked with me to recruit and train a successor, and I was able to retire on schedule.
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Like those above my first symptom was loss of smell years ago, but I treated it as a nuisance and did not bring it up with my doctor. 4 years ago at age 56 I felt weakness in my forearms, a slight tremor in my left thumb and deteriorating handwriting. I secured an appointment with a neurologist within a year and she confirmed PD. My father also had PD and was diagnosed at a similar age. I knew what was coming.
Work was not helpful. My occupation was IT project management, which was fairly stressful and prevented me from exercising at the level I would like to. I became fatigued, and my muscles in my arms and hips cramped up. My tremor worsened and I often felt overwhelmed. Fortunately my finances allowed me to retire, so I worked with my employer to find my replacement and trained her by doubling up on my last project. I finished April 30 at age 60.
Upon retirement I immediately ramped up my exercise to 2 hours a day, 5 days a week. I blend cycling (spin and outdoor), weight training and aqua fit. Initially it was a little exhausting, and I napped a lot. Within 3 months the cramps were gone, and within 4 months I rarely needed a nap, even after a heavy workout. The tremor is still there, but I don’t notice it as much.
My neurologist and I have agreed to continue to defer the start of levadopa based on these good results. I take Rasagiline which is thought to have preventative properties.