Forum Replies Created

  • dianne-r

    Member
    October 27, 2020 at 6:53 pm in reply to: Parkinon's impact on sleep and dreaming

    I too have REM sleep disorder. I was diagnosed 15 years ago with Parkinson’s disease. Even before the diagnosis I experienced very vivid dreams that were very detailed and very colorful. Over the years since the diagnosis, they have become terrible nightmares. I am told that I scream out loudly, kick, punch, swear and cry. Some of the dreams I remember but mostly have no idea what I have said or done. I have trouble getting to sleep and have tried melatonin without success. I use a Cpap every night but the nightmares and acting out my dreams continue. I wake up feeling exhausted. It is so frustrating because sleeping should feel good and restful. If I have to say what symptom of Parkinson’s bothers me most, that would be it. I do struggle with other symptoms, but this is the worst!  I feel it’s just the progression of the disease as it is now going on 16 years since diagnosis. I am fighting and will keep fighting this disease with a passion!

  • dianne-r

    Member
    October 15, 2020 at 5:10 pm in reply to: Where in the world are you?

    Hi. Dianne here. I live in sunny Southwest Florida. Very close to Naples.