Cathy Davis
Forum Replies Created
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I live in Decatur, Georgia in the Atlanta area near Emory. Emory has a great movement disorder program.
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Hi All,
I live in Atlanta GA. This is an awesome forum. I have learned so much. I was diagnosed in July of this year.
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Hi Jean, Lou, William and all participants interested in this topic.
Here is an update on my experience with Carbidopa/Levadopa. After a couple of weeks on the med and still experiencing nausea, I contacted my neurologist and he told me to take only 1/2 pill at a time. Then after two weeks, try the whole pill again. I asked him about taking an additional Carbidopa supplement. He said that was a possibility but it was a very expensive med so he leaves that for a last resort. Taking a half pill worked like a charm. After two weeks, I could tolerate a whole pill without nausea. I always drank at least 12-16 oz. of water with each pill as Jean suggests.
My situation as of late is that one pill, especially after my first dose in the morning, does not relieve my tremors. I find slight improvement after the second and third dose. My neurologist wants to increase my dose to two pills three times a day but said he wants me to have more time with one pill at a time for my body to get used to it.
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I appreciate your input and suggestions so much, Jean and Lou!
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What a bummer that you are having such a tough time getting your meds regulated so they are effective! What a shame that Sinemet is no longer being produced. I can already see in just one short week that it is a challenge. Yesterday, I had a good day with the meds with very little nausea in the morning and again, very little nausea after I took the second pill for the first time. I eat crystallized ginger and get relief fairly quickly. But I still had the tremors in my right hand even though my handwriting improved for a short time. So I figured I’d get better results with taking the med on an empty stomach like you do. OMG! I took it on an empty stomach this morning and drank a lot of water as you suggested but the nausea was very intense for about 90 minutes. I keep hoping it will improve in time but I may contact my neurologist as Lou suggested regarding trying another med. I know Levadopa/Carbidopa is the Cadillac of these meds so I keep giving it another try.
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Jean, that is great to know that you can eat protein a couple of hours after you take your meds. How long after breakfast do you take your next dose? I can see that it is all trial and error. That is a great idea to keep a journal while trying to figure it all out.
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Sorry for the extra symbols in my post. I forgot and replied to the email I received. So I copied and pasted my response to the post. The symbols didn’t show up until I submitted it.
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<div dir=”auto”>Jean,</div>
<div dir=”auto”>I still ate breakfast about an hour prior to taking my pill. This time I drank about 16 oz. or more of water. It definitely helped! Thank you for the tip.</div>
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<div dir=”auto”>I saw that Oatmeal has about 5 grams of protein. Is that too much protein?What do you eat for breakfast? I’ll try it on an empty stomach tomorrow since I know drinking a lot of water helps.</div>
<div dir=”auto”>Cathy</div> -
That is good to hear, Lou, that there may be other options. I will keep the Forum posted.
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Thank you, Jean. This is most helpful. I haven’t been drinking very much water when I take the pill so I will do that. Do you recall how long it took for you to get used to it and not get nauseous?
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I am newly diagnosed and my neurologist prescribed levodopa/carbidopa 25/100 three times a day. Last Tuesday, I started with one pill a day and am to increase to twice a day after a week and then three times a day the third week. I am experiencing nausea even though I am taking the pill on a full stomach. The nausea lasts for hours. It is hard to imagine taking an additional pill starting tomorrow. Does anyone know if the nausea gets better in time? Do you think I should go ahead and let my doctor know about this side effect and ask if I should try the brand Sinemet?