[Weigold Carol]

There are so many. The group of several symptoms working together keeping me from doing the things that I used to love.

The lack/ loss of balance. The body tremors.
Forgetfulness and brain fog. The change in my voice. The difficulty verbalizing my thoughts. Needing help showering and dressing due to balance issues. My inability to walk on my own due to gait issues and foot problems. Now I use a walker or go out in a wheelchair. The depression due to my anxiety and fear of my future. The burden I have put on my husband. The worry that I put myself through about my daughters not having a healthy and actively involved mom . Not being the kind of grandmother I had always looked forward to being.
The new and unwanted symptoms that appear each week. The symptoms that have made it impossible to cook a large dinner for my family each week and do all the shopping and cooking for the meal. Now I need assistance standing in the kitchen and it takes me forever to chop one onion. The sadness I feel inside for everything I know I’m missing out on. I was diagnosed just 10 months ago at age 69.

I could go on…

[Weigold Carol]

Hi Wendy,

Yes, that was me. I saw the results before my neurologist. My family and I were so happy. Until, I went to my follow up appointment and my doctor told me I had too many symptoms and I definitely had “ Parkinsonism”. What ever that is. 

She put me on Carbidopa-Levodopa and I did see some improvement of my symptoms but I’ve also been  experiencing new symptoms. It’s definitely Parkinson’s. I have no idea how the Datscan was negative. I guess it’s not very reliable.

Good luck to you 💗

Carol

[Weigold Carol]

Hi Laurie,

I was diagnosed with PD in November 2022. My Neurologist specializes in movement disorders. She put me on C/L right away. It absolutely helped my tremors and my ability to walk more easily. Yes, it also helped me with sleep. I still get fatigued in the afternoons and especially after physical therapy. I’m also able to stand for longer periods of time so I can cook again!

Everyone will be different, but I can honestly say C/L has been a game changer for me. I really notice when my dose is wearing off so I always set a timer to ensure I do not miss a dose. I take the 200/50ER  4X a day.

I did my research and asked my doctor many questions. The drug caused nausea for me so I always take C/L with a meal or crackers. The sleepiness during the day is better now that I’ve been on C/L for a while.

I know this will be a journey for me with changes along the way, but for now this drug has helped my symptoms greatly so I will continue to take it.

Keep up the communication and follow up visits with your neurologist.I was never on any other medication for PD so I can only speak to my experience with C/L.

Best of luck to you and stay strong😊.

Carol W.

 

 

[Weigold Carol]

When I get undressed at night and put on my pjs I get chills from my head to toes. My head also starts to itch for several seconds and then it’s over.