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Bari

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@blinnj

I need a new mattress and am not sure what type to choose. I’ve been sleeping on a Temperapedic, which has become difficult to turn and move on. Any recommendations of particular brands and models? View
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    Bari replied to the topic Is anyone out there taking methylene blue? in the forum Parkinson's Disease Medications 1 month ago

    At first I thought you were asking about taking blue crystal meth. Having watched all the episodes of the  “Breaking Bad” series, I was shocked by your suggestion! But then I looked closer … whew!  I decided to check out “methylene blue,” and found a few entries for the drug. None of the sites had much to offer regarding the drug itself and i…[Read more]

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    Bari replied to the topic Thigh pains. in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 6 months, 2 weeks ago

    James, the heel to buns stretch is a great one!

    John, I’ve never tried a topical magnesium cream, but I have found that taking calcium/magnesium supplements is helpful for preventing muscle spasms – especially in the legs. And thank you for mentioning it, as I ran out of them months ago and by now had forgotten that they were part of my daily…[Read more]

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    Bari replied to the topic How do you manage freezing episodes? in the forum Parkinson's Disease Symptoms 7 months, 1 week ago

    I was Dx’s with Parkinson’s 20+ yrs ago at age 49. I am now 70. It’s possible I could live for at least another  5+ yrs. Looking at the line of my PD continuum, I’d say that freezing and failure to initiate movement began interfering with my life about 13 years into the disease. It seemed to come on all of a sudden, and I took several signifant…[Read more]

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    Bari and Profile picture of Robert HarrisRobert Harris are now friends 7 months, 1 week ago

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    Bari replied to the topic Best Mattress for PD? in the forum Living ​With​ ​Parkinson's Disease 7 months, 1 week ago

    Lol! Yes, getting a good night’s sleep is THAT ridiculous, isn’t it? I’m printing this out for my husband to read.

  • Profile picture of Bari

    Bari replied to the topic Do all exercises help with the Parkinson's progression? in the forum Parkinson's Disease and exercise 7 months, 2 weeks ago

    Ummm, David Blacker … was your message to “Bart” referring to me, Bari. Just wanted to let you know that I’m a “she,” not a “he.” (tee-hee)

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    Bari replied to the topic Best Mattress for PD? in the forum Living ​With​ ​Parkinson's Disease 7 months, 2 weeks ago

    Wow! All these responses have generated a lot of info.  Judi, I wish you the best of luck with your new bed. Let us know how it works out for you.  Jean, thanks for your honest input. I did read thru most of the Thevocalm info (War & Peace) and I noticed that the bed for Dementia has firm edge support, but not the PD model (?) I think I’m l…[Read more]

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    Bari replied to the topic Best Mattress for PD? in the forum Living ​With​ ​Parkinson's Disease 7 months, 2 weeks ago

    Thank you!

  • Profile picture of Bari

    Bari replied to the topic Best Mattress for PD? in the forum Living ​With​ ​Parkinson's Disease 7 months, 2 weeks ago

    What I’m envisioning is something like a table runner – would that be correct? Working in thirds, the two ends of the runner are made of a slip-resistant fabric, while the middle third section is a satin-y fabric to make turning easier. And then you lay it crosswise on top of your bottom sheet – right where the hips and tush touch the mattress. Is…[Read more]

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    Bari replied to the topic Best Mattress for PD? in the forum Living ​With​ ​Parkinson's Disease 7 months, 2 weeks ago

    Ann,  I’m eager to hear more about this new mattress of yours. I hope you’ve found a winner and will be able to share your opinions about it with us, as well as the name of the manufacturer. (Maybe our moderator will step in and clarify).

     

  • Profile picture of Alan M

    Alan M and Profile picture of BariBari are now friends 7 months, 2 weeks ago

  • Profile picture of Bari

    Bari replied to the topic Best Mattress for PD? in the forum Living ​With​ ​Parkinson's Disease 7 months, 2 weeks ago

    This sounds like it could be a good solution, Karla. Thanks. I’ll check it out.

     

  • Profile picture of Bari

    Bari replied to the topic Where do you live? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 7 months, 2 weeks ago

    I grew up on the Jersey Shore. My husband and I recently moved a bit further inland to a Continuing Care Retirement Community in Freehold, NJ. My profile cover says it all! Life is good.

     

  • Profile picture of Bari

    Bari replied to the topic Best Mattress for PD? in the forum Living ​With​ ​Parkinson's Disease 7 months, 2 weeks ago

    Tom, I confirm what you’ve said to be true, too. However, poly/satin, which FEELS so slinky and lets you slide into turns, doesn’t breathe, and I wake up drenched. In addition, 100% silk bed linens are expensive and require special care. So I’ve upscaled my all-cotton sheets to higher-count sateens. It’s the best I can do. The same thing can…[Read more]

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    Bari's profile was updated 7 months, 2 weeks ago

  • Profile picture of Bari

    Bari started the topic Best Mattress for PD? in the forum Living ​With​ ​Parkinson's Disease 7 months, 2 weeks ago

    I need a new mattress and am not sure what type to choose. I’ve been sleeping on a Temperapedic, which has become difficult to turn and move on. Any recommendations of particular brands and models?

  • Profile picture of Bari

    Bari posted an update 7 months, 2 weeks ago

    I need a new mattress and am not sure what type to choose. I’ve been sleeping on a Temperapedic, which has become difficult to turn and move on. Any recommendations of particular brands and models?

  • Profile picture of Bari

    Bari replied to the topic Will you take the Covid-19 booster when it's available? in the forum Coronavirus (COVID-19) and Parkinson’s 7 months, 2 weeks ago

    ” PD is an autoimmune disease.”  Has this been proven to be true, Bill? I thought it was still in the theory stage. I’m interested to know the current status.

     

  • Profile picture of Bari

    Bari replied to the topic Will you take the Covid-19 booster when it's available? in the forum Coronavirus (COVID-19) and Parkinson’s 7 months, 2 weeks ago

    YES. YES. YES.

  • Profile picture of Bari

    Bari replied to the topic How do you manage freezing episodes? in the forum Parkinson's Disease Symptoms 7 months, 2 weeks ago

    Episodes of freezing can be terrifying. Walking across a threshold, through a door frame, or between large objects (ie; furniture) are common triggers. Some people (not me, unfortunately) use pocket lasers and direct the line of light to a point beyond the obstacle. Focusing on the line or endpoint distracts the brain from focusing on the nearer…[Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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