@blinnj
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Bari replied to the topic Is anyone out there taking methylene blue? in the forum Parkinson's Disease Medications 8 months, 2 weeks ago
At first I thought you were asking about taking blue crystal meth. Having watched all the episodes of the “Breaking Bad” series, I was shocked by your suggestion! But then I looked closer … whew! I decided to check out “methylene blue,” and found a few entries for the drug. None of the sites had much to offer regarding the drug itself and i…[Read more]
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Bari replied to the topic Thigh pains. in the forum A Forum for Parkinson's Disease Caregivers 1 year, 2 months ago
James, the heel to buns stretch is a great one!
John, I’ve never tried a topical magnesium cream, but I have found that taking calcium/magnesium supplements is helpful for preventing muscle spasms – especially in the legs. And thank you for mentioning it, as I ran out of them months ago and by now had forgotten that they were part of my daily…[Read more]
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Bari replied to the topic How do you manage freezing episodes? in the forum Parkinson's Disease Symptoms 1 year, 2 months ago
I was Dx’s with Parkinson’s 20+ yrs ago at age 49. I am now 70. It’s possible I could live for at least another 5+ yrs. Looking at the line of my PD continuum, I’d say that freezing and failure to initiate movement began interfering with my life about 13 years into the disease. It seemed to come on all of a sudden, and I took several signifant…[Read more]
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Bari and
Robert Harris are now friends 1 year, 2 months ago
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Bari replied to the topic Best Mattress for PD? in the forum Living With Parkinson's Disease 1 year, 2 months ago
Lol! Yes, getting a good night’s sleep is THAT ridiculous, isn’t it? I’m printing this out for my husband to read.
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Bari replied to the topic Do all exercises help with the Parkinson's progression? in the forum Parkinson's Disease and exercise 1 year, 2 months ago
Ummm, David Blacker … was your message to “Bart” referring to me, Bari. Just wanted to let you know that I’m a “she,” not a “he.” (tee-hee)
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Bari replied to the topic Best Mattress for PD? in the forum Living With Parkinson's Disease 1 year, 2 months ago
Wow! All these responses have generated a lot of info. Judi, I wish you the best of luck with your new bed. Let us know how it works out for you. Jean, thanks for your honest input. I did read thru most of the Thevocalm info (War & Peace) and I noticed that the bed for Dementia has firm edge support, but not the PD model (?) I think I’m l…[Read more]
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Bari replied to the topic Best Mattress for PD? in the forum Living With Parkinson's Disease 1 year, 2 months ago
Thank you!
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Bari replied to the topic Best Mattress for PD? in the forum Living With Parkinson's Disease 1 year, 2 months ago
What I’m envisioning is something like a table runner – would that be correct? Working in thirds, the two ends of the runner are made of a slip-resistant fabric, while the middle third section is a satin-y fabric to make turning easier. And then you lay it crosswise on top of your bottom sheet – right where the hips and tush touch the mattress. Is…[Read more]
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Bari replied to the topic Best Mattress for PD? in the forum Living With Parkinson's Disease 1 year, 2 months ago
Ann, I’m eager to hear more about this new mattress of yours. I hope you’ve found a winner and will be able to share your opinions about it with us, as well as the name of the manufacturer. (Maybe our moderator will step in and clarify).
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Alan M and
Bari are now friends 1 year, 2 months ago
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Bari replied to the topic Best Mattress for PD? in the forum Living With Parkinson's Disease 1 year, 2 months ago
This sounds like it could be a good solution, Karla. Thanks. I’ll check it out.
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Bari replied to the topic Where do you live? in the forum Diagnosis Information and General Questions 1 year, 2 months ago
I grew up on the Jersey Shore. My husband and I recently moved a bit further inland to a Continuing Care Retirement Community in Freehold, NJ. My profile cover says it all! Life is good.
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Bari replied to the topic Best Mattress for PD? in the forum Living With Parkinson's Disease 1 year, 2 months ago
Tom, I confirm what you’ve said to be true, too. However, poly/satin, which FEELS so slinky and lets you slide into turns, doesn’t breathe, and I wake up drenched. In addition, 100% silk bed linens are expensive and require special care. So I’ve upscaled my all-cotton sheets to higher-count sateens. It’s the best I can do. The same thing can…[Read more]
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Bari's profile was updated 1 year, 2 months ago
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Bari started the topic Best Mattress for PD? in the forum Living With Parkinson's Disease 1 year, 2 months ago
I need a new mattress and am not sure what type to choose. I’ve been sleeping on a Temperapedic, which has become difficult to turn and move on. Any recommendations of particular brands and models?
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Bari posted an update 1 year, 2 months ago
I need a new mattress and am not sure what type to choose. I’ve been sleeping on a Temperapedic, which has become difficult to turn and move on. Any recommendations of particular brands and models?
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Bari replied to the topic Will you take the Covid-19 booster when it's available? in the forum Coronavirus (COVID-19) and Parkinson’s 1 year, 2 months ago
” PD is an autoimmune disease.” Has this been proven to be true, Bill? I thought it was still in the theory stage. I’m interested to know the current status.
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Bari replied to the topic Will you take the Covid-19 booster when it's available? in the forum Coronavirus (COVID-19) and Parkinson’s 1 year, 2 months ago
YES. YES. YES.
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Bari replied to the topic How do you manage freezing episodes? in the forum Parkinson's Disease Symptoms 1 year, 2 months ago
Episodes of freezing can be terrifying. Walking across a threshold, through a door frame, or between large objects (ie; furniture) are common triggers. Some people (not me, unfortunately) use pocket lasers and direct the line of light to a point beyond the obstacle. Focusing on the line or endpoint distracts the brain from focusing on the nearer…[Read more]
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