[John William]

I was diagnosed with PD 2 years ago at age 69.  Sleep disruption, fatigue and a few tremors are the only symptoms I have so far.  An uncle develop PD at age 58 and lived to 72.  So mine is probably genetic, yet some of it might be CTE from multiple head traumas playing many years of football.

[John William]

I have Gastroparesis (GP), which was diagnosed 9 months ago following my second hiatal hernia surgery. This chronic “paralyzed stomach” can be caused by damaging the Vagus nerve during stomach surgery, or it could simply be another symptom of PD. The one med they prescribe for GP can cause tremors so it conflicts with the PD meds. I’m trying to control GP daily nausea with a soft diet that is low fat and low fiber, which also conflicts with an ideal PD diet.

[John William]

Shortly after being diagnosed two years ago, I developed Gastroparesis (GP), or paralyzed stomach that doesn’t digest and move food into the small intestines. 40% of all PD patients have some form of GP. Daily nausea, and the only approved medicine increases tremors so the doctor won’t prescribe it.

[John William]

Just before I was diagnosed with PD over two years ago, I had regular GERD which was a result of a hiatal hernia.  They repaired the hernia, then it reoccurred again 18 months later, so they did another hiatal hernia repair (both surgeries were done orthoscopically, thank goodness),   It got rid of the GERD, but immediately after the 2nd repair I developed Gastroparesis (GP) and have been dealing with daily bouts of nausea the past year.

To help food move out of the stomach, they shot botx into the sphincter (valve or hole from stomach to small intestines) last March which did not provide any relief from the nausea.  Next month, a Gastro in Phoenix will do the G-POEM surgery where they actually slice around that sphincter to enlarge the opening for food to move through more easily.

There is a stomach emptying test they can do to determine if you have GP.

I am eager to get the GP resolved so I can get back to an exercise routine to help with the PD.

 

[John William]

It sounds like you might have Gastroparesis (GP). Shortly after being diagnosed two years ago, I developed GP, or paralyzed stomach that doesn’t digest and move food into the small intestines. I have lost over 30 pounds. 40% of all PD patients have some form of GP. Daily nausea, and the only approved medicine (Metoclopramide) increases tremors so the doctor won’t prescribe it.