Anita McDaniel Brueck
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The day we got the diagnosis from my Neuro, the first question out of my husband’s mouth was “can she retire with this?” That was at 5pm on a Friday. On Monday morning I called my boss and retired. We both cried over the phone — he was making way too much money off of me — and that was the last tears I’ve shed over this insanity.
It was definitely the right thing to do, in hindsight — I qualified for a lucrative disability program. Had I hung on, working with this diagnosis hanging over me, it might not have gone as well. It gave me the means to address my situation head-on. That was almost five years ago and I would not change a thing.
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I’ve been on it for about two years — and love it. I use this patch with Senimet — works good. I haven’t had a so much as a twitch for nearly two years. It is pricey – my copay is $325/mo.
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Left hand and wrist tremors were my first obvious symptom that prompted me to get a diagnosis. That was two years ago. Some time during the last approximately eighteen months, my tremors have stopped completely. Nada. None. I’m not symptom free — but those tremors have disappeared – vamoose!
Here’s my regimen, fwiw:
C/L ER 50-200mg 4 x day Citalopram 10mg 2 x day
C/L 250199mg 3 x day Gocovri 137mg 1@bedtime
Neurpro 4 mg.24 hrs
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I’m starting to have some left hand tremors — and my left toes get going pretty good around midnight and sometimes when it’s about time for my next leva/carbo, which I take about every four hour. I still consider mine to be pretty well controlled. 50/200 at 8pm and 6 am — 25/100 6am, 11am, 4pm, 8pm. I’m not rigid on the times — they are an approximation based on how i feel and how busy i am. I occasionally go as long as 6 hours between tabs. Being busy and focused on something helps greatly and influences my rx.
The patch as I understand it, helps your body to use the l/c.