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Where do you find support for yourself as a caregiver?
Having help from others can make caregiving more sustainable, and caring for someone with Parkinson’s is not something you should have to do alone.
Where do you find support for yourself as a caregiver?
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8 Replies
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Therapy.
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This reply was modified 3 weeks ago by Sussan Thomas.
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This reply was modified 3 weeks ago by Sussan Thomas.
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Hi Sussan, therapy can be such an important source of support, especially when caregiving brings a lot of emotions and challenges. Has therapy been helpful for you in navigating a particular part of your caregiving journey?
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This reply was modified 3 weeks ago by
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My family helps me.
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Hi Aretha, having family you can lean on can make such a difference because you don’t have to carry everything on your own. What kind of support from your family has been most helpful to you? Have you talked to your family about ways they can support you, or has it happened naturally?
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I use a combination of friends and a paid caregiver through an agency. It wasn’t easy to find a reliable agency, but so far this one has been good. I use the paid caregiver for regularly scheduled times that I need someone, and use friends for ad-hoc help.
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Hi KR and JS, thanks for sharing. What would you say has made the biggest difference in finding a caregiver or agency you can trust?
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Making sure I get some personal time to do some things like golf when my Partner has appointments (hair, nails) that I am not needed. And have some family back-up if need be. Thankfully my Partner is still able to drive and get around at this stage. Onapgo and a regimented workout schedule is helping that. God Bless everyone on their journey.
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Hi SteveNJ, making space for things you enjoy can be so important for maintaining your own well-being while caring for someone else. How do you make sure you get that personal time when appointments or other caregiving needs come up?
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